Living with Multiple Myeloma

Cancer Survival Toolbox®

Multiple Myeloma CST LogoThe goal of this program is to provide you as a person diagnosed with multiple myeloma—as well as your caregivers, family, and friends—with practical tools you can use in your daily life as you deal with your cancer diagnosis and treatment. Living with Multiple Myeloma, which was written by cancer survivors and healthcare professionals, can be helpful both to individuals newly diagnosed with multiple myeloma, as well as to anyone at any other stage of this illness.

After listening, you will better understand:

  • Multiple myeloma diagnosis and basic treatment options
  • Side effects and symptom management
  • Coping with change
  • Information for caregivers

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More Information

View the Resource Booklet for “Living with Multiple Myeloma” (PDF)

Track-by-Track Transcripts

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  1. Introduction
  2. Understanding Your Treatment Options
  3. Side Effects and Symptom Management
  4. Coping with Change
  5. Information for Caregivers
  6. Conclusion

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Additional Resources

International Myeloma Foundation (IMF)  |  (800) 452-2873
IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. It also serves patients and families with a hotline, a multilingual website, educational materials, and global support groups.

The Multiple Myeloma Research Foundation (MMRF)  |  (203) 229-0464
MMRF serves to urgently and aggressively fund research that will lead to the development of new treatments for multiple myeloma.

The Leukemia & Lymphoma Society (LLS)  |  (800) 955-4572
LLS is the world’s largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The mission of LLS is to cure leukemia, lymphoma, Hodgkin disease, and myeloma and to improve the quality of life of patients and their families. They can also help patients find information about clinical trials online or over the phone.

The Lymphoma Research Foundation (LRF)  |  (800) 500-9976
LRF is the nation’s largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF’s mission is to eradicate lymphoma and serve those touched by this disease. LRF also offers webcasts and podcasts for lymphoma patients, survivors, and loved ones. LRF’s hotline is staffed by specialists who can help patients find information about clinical trials they may qualify for.

CancerCare  |  (800) 813-4673
A national organization that provides free professional support services to anyone affected by cancer: including people with cancer, caregivers, loved ones and the bereaved. Programs—including counseling and support groups, education, financial assistance, and practical help—are provided by professional oncology social workers free of charge. Counseling and some materials are available in Spanish.

Take ChargeTake Charge of Your Cancer Care

NCCS has made two simple tools to help patients on their journey: The Know Yourself Worksheet and Essential Questions to Ask Your Doctor. These tools encourage communication between patients and doctors and help patients better prepare for their appointments.
Order the Take Charge Toolkit for free in our store »

TeamworkTeamwork: The Cancer Patient’s Guide to Talking With Your Doctor

Teamwork is a helpful booklet published by NCCS that aims to help cancer survivors better communicate with their physicians. Developed by cancer survivors and health care professionals, this booklet addresses the need for good communication and provides a list of sound, practical questions that patients can use when talking with their doctor.
Download the PDF »
Order a free copy from our store »

Find more helpful resources in the searchable NCCS Resource Guide »

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