NCCS Press & Media

For media inquiries, please contact Dan Weber through our contact form, or call 301.650.9127, 1.877.NCCS.YES.


NCCS Announcements and Press Releases

 

NCCS Joins Letter to Congress Opposing Health Care Cuts in Tax Reform Legislation

NCCS and the 11 other member organizations of the Cancer Leadership Council sent a letter to Congress expressing “serious concerns about the potential negative impact of tax reform legislation currently under consideration on those living with cancer.” Three areas of concern discussed in the letter are repeal of the Affordable Care Act’s (ACA) individual mandate, […]

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NCCS Joins AARP In Opposing Medical Expense Deduction Repeal

NCCS joined a letter, spearheaded by AARP and sent to all members of the House of Representatives, opposing the proposed elimination of the Medical Expense Deduction. The proposed repeal is included in the Tax Cuts and Jobs Act of 2017. A total of 37 organizations signed the letter. Read the letter below. November 7, 2017 […]

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NCCS Announces Dr. Julia Rowland, Former Director of Office of Cancer Survivorship at NCI, as Newest Board Member

NCCS announced that Julia Rowland, PhD, former Director of the National Cancer Institute’s (NCI) Office of Cancer Survivorship (OCS), has joined the Board of Directors. Dr. Rowland retired from the NCI in September after 18 years. Former NCCS CEO Ellen Stovall was integral to the creation of the Office of Cancer Survivorship and helped recruit Dr. Rowland as its leader. Dr. Rowland has a long history of collaboration with NCCS, including […]

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NCCS Letter to HHS Highlights “Deep Reservations” Concerning Massachusetts 1115 Waiver

The National Coalition for Cancer Survivorship (NCCS) sent a letter to Eric Hargan, Acting Secretary of the Department of Health and Human Services (HHS), to express “deep reservations” regarding the proposal by the Commonwealth of Massachusetts to amend its Section 1115 waiver. In the letter, NCCS states: Many cancer patients have been assured access to care through MassHealth, the state’s Medicaid program. We are concerned […]

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NCCS’ Ellen L. Stovall Award Reception Recognizes Two Individuals Advancing Patient-Centered Cancer Care

The National Coalition for Cancer Survivorship (NCCS) presented its second annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care last night in Washington, D.C. After a nationwide competition, a distinguished selection committee chose this year’s winners, Pat Coyne, MSN, of the Medical University of South Carolina and Meg Gaines, JD, of the University of Wisconsin at Madison. Mr. Coyne was nominated by […]

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NCCS Position Statement on Actions to Undermine ACA

October 13, 2017 The National Coalition for Cancer Survivorship (NCCS) is alarmed by the actions President Trump took this week to undermine the Affordable Care Act. These decisions are likely to destabilize the individual insurance market and put affordable and adequate health insurance out of reach for millions of Americans. The health and well-being of […]

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NCCS Statement on President Trump’s Harmful Health Care Executive Order

President Trump signed an executive order on health care today that directs federal agencies to write rules allowing association health plans and short-term health plans to be created, with neither being subject to the essential health benefit requirements of plans under the Affordable Care Act (ACA). Many independent health analysts […]

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NCCS Sends Letter to Sen. Finance Committee Opposing Graham-Cassidy ACA Repeal

The National Coalition for Cancer Survivorship (NCCS) sent a letter to the Senate Finance Committee in response to a request for public testimony for today’s hearing on the Graham-Cassidy bill that aims to repeal the Affordable Care Act (ACA). The bill would erode pre-existing condition protections, which cancer patients and survivors rely on to be […]

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NCCS Joins Cancer Groups to Oppose Graham-Cassidy ACA Repeal in a Letter to Senate Leadership

NCCS joins patient and provider organizations in the Cancer Leadership Council (CLC) in opposing the Graham-Cassidy-Heller Johnson legislation to repeal and replace the Affordable Care Act. The CLC sent a letter to Senators expressing serious concern that the legislation would adversely affect the ability of cancer patients to obtain affordable and adequate insurance coverage and appropriate cancer treatment. Every segment of the cancer patient […]

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ACA Update | September 20, 2017: NCCS Facebook Live – Harmful Graham-Cassidy Repeal Bill Breakdown & How You Can Help Stop It

Earlier today, NCCS hosted a brief Facebook Live event to break down the most recent developments about the harmful Graham-Cassidy ACA repeal bill and what you can do to help stop it from becoming law.
In the video, NCCS CEO Shelley Fuld Nasso and Policy Manager Lindsay Houff go over the details of this disastrous legislation that would cause millions of Americans to lose insurance coverage and access to affordable […]

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ACA Update | September 8, 2017: Bipartisan ACA Hearings Convene; Cassidy-Graham Repeal Plan Looms

During two Senate HELP committee hearings this week on stabilizing the ACA market, two panels of insurance commissioners and governors agreed that funding cost-sharing reduction payments were critical in keeping insurers in the marketplace and avoiding premium increases of 20% or more. As we reported previously, CSR payments compensate insurers for the discounts they are mandated under Obamacare […]

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Senate Votes Down Repeal Plan

After a dramatic week in Washington, the Senate voted last night to reject the “skinny repeal” bill that would have destabilized insurance markets and resulted in 15 million fewer people insured as early as next year. The vote was the third repeal bill the Senate rejected this week. It is not clear what’s next, but for today, we can breathe a sigh of relief that millions of Americans will not lose coverage. In talking to cancer survivors, in person […]

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NCCS Statement on Senate’s Rejection of Harmful Health Care Freedom Act

The National Coalition for Cancer Survivorship issued the following statement regarding the defeat of the harmful Health Care Freedom Act in the Senate. The bill failed by a vote of 49-51. “The defeat of the so-called Health Care Freedom Act is a long-awaited victory for millions of cancer patients, survivors, their families. It is unconscionable […]

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NCCS Statement on Senate’s Latest Health Care Reform Developments

The National Coalition for Cancer Survivorship (NCCS) applauds the failure to pass the harmful Better Care Reconciliation Act (BCRA) in the Senate. BCRA would have been disastrous for millions of older, sick, and low-income Americans. We thank the Senators and governors who made the health care needs of their constituents their top priority. We especially appreciate Senators Susan Collins, Shelley Moore Capito, and Lisa Murkowski […]

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NCCS and 33 Cancer-Related Patient Advocacy and Professional Organizations Jointly Oppose Senate’s Revised BCRA

Silver Spring, MD – NCCS joined 33 cancer-related patient advocacy and professional organizations in opposition to the Senate’s revised Better Care Reconciliation Act (BCRA). “The Senate’s BCRA, just as the House’s AHCA, is a direct threat to America’s 16 million cancer patients and survivors who rely on timely and uninterrupted access to comprehensive and affordable health care,” said NCCS CEO Shelley Fuld Nasso. […]

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NCCS Submits Comments to CMS, Stresses Importance of ACA and Outlines Steps to Strengthen Law

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) in response to a request for information, in which CMS asked for suggestions to empower patients and promote consumer choice, stabilize insurance markets, and enhance affordability. In our letter, NCCS stressed the importance of the Affordable Care Act, with its pre-existing condition protections, community rating requirements, essential […]

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ACA Update | July 7, 2017: Senate GOP Try to Tweak ACA Repeal Bill as Dissent Grows During Recess

When Senate Majority Leader Mitch McConnell (R-KY) decided to delay the vote for the Better Care Reconciliation Act (BCRA), there was a collective sigh of relief from the patient community. But our work is far from over. The Senate is still planning to move forward with their attempt to pass the bill, and now is a critical time to voice your opposition to this harmful legislation. The most recent Senator to speak out against the bill is North Dakota Senator John Hoeven […]

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NCCS Statement on CBO Report of Senate’s “Better Care Reconciliation Act”

Washington, D.C – The National Coalition for Cancer Survivorship (NCCS) issued the following statement in response to the Congressional Budget Office (CBO) analysis of the Senate’s “Better Care Reconciliation Act” (BCRA). The CBO reported that the BCRA would lead to 22 million more uninsured compared to current law. NCCS advocates from across the country will […]

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ACA Update | June 16, 2017: As Negative Analyses Pile Up, Senate GOP Continues Secret Health Care Negotiations

As we reported last week, moderate Republicans in the Senate seem to be caving on their earlier promises to reject any bill that slashes Medicaid funding. Senators Collins and Capito have reportedly stated they would consider a “phasing out” of the Medicaid expansion program. However, lengthening the timeframe for ending the program does nothing to help the millions of people who depend on Medicaid for health insurance, […]

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NCCS Joins 120 Patient, Provider, and Consumer Organizations to Oppose Medicaid Cuts and Funding Caps

The National Coalition for Cancer Survivorship (NCCS) joined with 120 leading patient, provider and consumer organizations to express grave concerns about potential Senate actions on Medicaid. Together, the groups implored Senate leadership to protect the Medicaid program and oppose efforts to roll back Medicaid expansion or change Medicaid’s funding in a way that would harm patients and consumers. In a letter to both […]

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ACA Update | June 9, 2017: Senate Finding Ways to Repeal ACA

There have been several key developments in the past week, starting with Republican leadership sharing a bill of the Senate’s version of the AHCA at a caucus luncheon on Tuesday. The public has yet to see the language being considered, as there have been no public hearings or input from experts in the health care or patient advocacy space. NCCS understands the bill will likely be quite similar to the House version. […]

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ACA Update | June 2, 2017: AHCA is Widely Unpopular, Senate Continues Negotiations

During meetings with Senate offices this week, NCCS learned that negotiations continue and a consensus on the Senate version of the AHCA has yet to be struck among Republicans in the chamber. However, we also learned alarming news that the Senate version is likely to be very close to the version the House passed in early May. Anything that remotely resembles the AHCA would be catastrophic, and we cannot allow such a […]

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ACA Update | May 26, 2017: CBO Confirms 23 Million More Uninsured Under AHCA, Trump Undecided on 2018 Subsidies

This week, the nonpartisan Congressional Budget Office (CBO) released their analysis on the impacts of the American Health Care Act (AHCA). As expected, the results were devastating. The AHCA would leave 23 million more Americans uninsured by 2026 than under the current law, the Affordable Care Act (ACA). The coverage […]

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NCCS Statement on CBO Report of Revised American Health Care Act

NCCS today issued the following statement following the release of the Congressional Budget Office (CBO) report on the updated American Health Care Act. “Today’s CBO report shows what we already knew—that the American Health Care Act (AHCA) would be devastating for cancer patients, survivors, and their families,” said NCCS CEO Shelley Fuld Nasso. “The revised AHCA that was passed by the House […]

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NCCS Sends Letter to Sen. Hatch on Health Care Reform Priorities

(NCCS) sent a letter to Sen. Orrin Hatch (R-UT), Chairman of the Senate Finance Committee, in response to his office’s request for input from stakeholders regarding health care reform. “As the Senate continues to discuss health care reform, and in light of the destructive American Health Care Act passed by the House, we must continue conveying the priorities of cancer patients and survivors,” said NCCS CEO Shelley Fuld Nasso. […]

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Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them

Last month, I had the honor of speaking at CancerCon, an incredible gathering of 650 adolescent and young adult (AYA) cancer survivors, their caregivers, and health care providers and advocates from across the country. Along with Kelsey Nepote, NCCS Advocacy Manager, and Kate Houghton, CEO of Critical Mass, we presented “From Patient to Advocate – Using Your Voice to Make Change.” We talked about the journey from […]

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ACA Update | May 5, 2017: AHCA Passes in House, Now Faces Major Obstacles in Senate

Yesterday, the House of Representatives passed the American Health Care Act (AHCA), including an amendment authored by Congressman Tom MacArthur (R-NJ) and brokered with members of the Freedom Caucus, which would allow states to opt out of providing essential health benefits and community rating. Essential health benefits (EHBs) are ten services the ACA requires insurers to include in all plans, such as hospitalization […]

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NCCS Joins Cancer Organizations to Express Opposition to the American Health Care Act

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders regarding the American Health Care Act (AHCA): CANCER LEADERSHIP COUNCIL A PATIENT-CENTERED FORUM OF NATIONAL ADVOCACY ORGANIZATIONS ADDRESSING PUBLIC POLICY ISSUES IN CANCER Cancer Organizations Express Opposition to American Health Care Act Washington, May 4, 2017 […]

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Ben Fishman, NCCS Board Member

Poor Amendments Cannot Fix A Bad Bill

By Ben Fishman, NCCS Board Member—Three years ago this week, a specially-trained neurosurgeon opened up my scalp, and for next 12 hours, he delicately resected as much of a golf-ball sized tumor as possible without permanently damaging the area of my brain that controls speech and fine motor skills. The fact that I can type this article on a normal keyboard and read it aloud is a testament to the doctor’s skill. Without him, or the team who supported the procedure […]

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ACA Update | April 28, 2017: AHCA 2.0 Is Released (Worse for Patients than the Original Bill)

As we previously reported, the American Health Care Act (AHCA) – the effort to replace the Affordable Care Act – was not even brought to a vote in the House of Representatives before the spring Congressional recess. Members of Congress confirm that advocates who opposed the AHCA were key to the failure of the original bill. Earlier this week, the full text of an amendment to the AHCA was published and is now being considered […]

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ACA Update | April 21, 2017: House GOP Readies a Revised Health Care Bill

“Healthcare is not dead, we’re still working on it.” – Paul Ryan | During recess this week and last, Members of Congress continued to hear from constituents at town hall events where a major focus has been on health care and backlash against efforts to repeal the Affordable Care Act. Meanwhile, the conservative House Freedom Caucus has been working with moderate Republicans to come up with an amendment to add to the […]

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ACA Update | April 14, 2017: Town Hall Headlines, Cost-Sharing Subsidies, the “Death Spiral”, and Trump’s Final “Market Stabilization” Rule

Although Members of Congress are on recess this week and next, talks of ACA and its future continue. Grassroots support of the ACA has made headlines again at town hall events across the U.S. during this recess. CBS News reports on several town hall meetings, where Republican lawmakers faced intense criticism for their position the American Health Care Act (AHCA). The Hill reports that some Members of Congress are […]

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ACA Update | April 10, 2017: New GOP Proposal Would Undermine Pre-Existing Condition Protections

As talks of repeal and replace quickly resurfaced after the downfall of the American Health Care Act (AHCA), Republican’s newest proposals are even more devastating for cancer patients than the AHCA would’ve been. The newest Republican health care proposals would eliminate even more patient protections, including the essential health benefits that require insurers to cover services such as chemotherapy, hospital visits, […]

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ACA Update | March 31, 2017: The Fight to Protect the ACA Is Far From Over.

Last week at a press conference after the American Health Care Act (AHCA) was pulled from the House floor, Paul Ryan said, “The ACA is the law of the land for the foreseeable future.” But this week lawmakers signaled that the fight is far from over. Republican leadership vowed to restart negotiations for repealing the ACA. While Republicans might try to resurrect repeal and replace, they could in the meantime focus on […]

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ACA Update | March 24, 2017: Speaker Ryan Withdraws the AHCA

Today, Speaker of the House Paul Ryan withdrew the American Health Care Act (AHCA) when it became clear that he did not have the votes to pass it. In his press conference, he said that the Affordable Care Act (ACA) is the “law of the land for the foreseeable future.” The National Coalition for Cancer Survivorship (NCCS) strongly opposed the AHCA, which would have harmed millions of Americans, including cancer patients and […]

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The AHCA’s 52 Million Uninsured Is Not “Freedom”

Throughout the repeal and replace debate, NCCS has been meeting with Congressional offices to share our concerns from the cancer patient perspective. During one of those visits, we simply asked, “At the end of the day, what do you hope [the AHCA] accomplishes since there will be millions left uninsured?” Without hesitation, the staffer replied, “People will have the choice to go without insurance if they want to. It’s about freedom.” […]

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87 Organizations Call on Congress to Protect Medicaid

Bethesda, MD – 87 organizations issued a letter today calling on Congress to take a hard look at the likely significant and life-threatening consequences of the American Health Care Act on millions of patients. The organizations represent Americans with complex health needs who rely on Medicaid for access to care, prevention and treatment. For example, […]

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ACA Update | March 17, 2017: The AHCA CBO Score, a Cancer Survivor’s Question for Tom Price, and New Polling

This week’s news was dominated by the nonpartisan CBO issuing its long-awaited analysis of the AHCA. The scathing report was worse than many had predicted, estimating that 24 million more individuals would be uninsured in comparison to if the Affordable Care Act (ACA) remained in place. That would total 52 million Americans without health insurance by 2026, the highest uninsured rate in the nation’s history. […]

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Scott Gottlieb

NCCS Statement on Nomination of Dr. Scott Gottlieb for FDA Commissioner

NCCS applauds the nomination of Dr. Scott Gottlieb for commissioner of the FDA. Dr. Gottlieb’s experience as a physician, a policymaker, and a patient uniquely qualifies him to lead the FDA at this important time. The agency confronts a rich pipeline of new products for cancer and other illnesses, and these products raise complicated scientific and clinical issues. FDA must also implement the provisions of the 21st Century Cures […]

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NCCS Statement on CBO Score of the American Health Care Act (AHCA)

The Congressional Budget Office (CBO) analysis of the AHCA provides further evidence that this legislation would be devastating for cancer patients. The CBO estimates that compared to the ACA, 14 million more people would be uninsured in 2018. Health care coverage is a leading indicator for cancer outcomes. […]

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ACA Update | March 10, 2017: GOP Repeal Plan, the AHCA, Moves Forward in the House

The AHCA, the long-awaited Republican bill to repeal and replace the Affordable Care Act (ACA), was unveiled earlier this week. NCCS released a statement, explaining that this legislation would be devastating for older, sicker, and poorer Americans, let alone those facing a cancer diagnosis. The AHCA hurts older Americans the most by allowing insurance companies to charge up to five times as much for premiums […]

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NCCS Statement on the American Health Care Act

The AHCA seeks to repeal and replace significant portions of the current health care law, the Affordable Care Act (ACA). Even upon initial review, there is no question that the American Health Care Act (AHCA) is a significant step backward from the ACA’s affordability and patient protections, and will hurt millions of Americans, including cancer patients and survivors. […]

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NCCS Submits Comments on CMS Proposed ACA Market Stabilization Rule

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule that is intended to “help stabilize the individual and small group markets.” The Affordable Care Act (ACA) has provided health insurance coverage—and therefore access to health care—for many cancer survivors who were previously denied insurance coverage due to their […]

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What Caught Our Eye: GOP ACA Talking Points Analysis, Right to Try Op-Ed, “Worry, Scan, Treat, Repeat”

Kaiser Health News’ Julie Rovner analyzes key Republican talking points on the ACA. One concern consumers have is high out-of-pocket costs. But, Rovner writes, “Republicans’ most popular proposals for replacing current individual insurance plans — cutting back on required benefits and giving more people access to tax-preferred health savings accounts — would likely increase […]

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ACA Update | February 3, 2017: Inadequate Replacement Plans

There remains no consensus among Republicans around a replacement plan for the ACA. In fact, more replacement proposals were presented, and after NCCS analyzed these proposals, we found that they do not come close to the level of protections the ACA provides currently and are therefore not adequate for cancer survivors.

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ACA Update | January 26, 2017: Watch Our ACA Webinar

President Donald Trump and the Republican leadership in Congress will soon be making good on their campaign promise to repeal the Affordable Care Act (ACA). While replacement plans have been proposed, there is no consensus on an alternative.

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ACA Update | January 24, 2017: The Cassidy-Collins Plan & ACA Executive Order

In early January, Congressional Republicans took the first steps toward repealing the ACA. Significant public outcry at the prospect of repealing the ACA without a replacement plan has been effective, as both legislators and the new administration now indicate that a replacement needs to be considered at the same time as repeal efforts.

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CPAT Members’ Op-ed: ACA Replacement Must Include Affordable Insurance for Preexisting Conditions

NCCS’ Cancer Policy & Advocacy Team (CPAT) members Jen Campisano and Ben Fishman wrote a powerful op-ed for STAT News. Both diagnosed with cancer in their early thirties, they each have endured well over a million dollars in surgeries, radiation, and chemotherapy to treat their illness. Without the preexisting conditions and lifetime limit protections in […]

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NCCS Joins Letter to Congressional Leaders Regarding the Affordable Care Act

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders regarding the Affordable Care Act (ACA). In our letter, we urge Congress not to repeal the ACA until specific proposals are identified to replace the ACA. Representing cancer patients, caregivers, and numerous other stakeholders, the letter […]

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NCCS Statement on Signing Into Law of 21st Century Cures Act

The National Coalition for Cancer Survivorship (NCCS) applauds Congress passing and President Obama signing the 21st Century Cures Act. Cancer survivors and others dealing with serious illness are encouraged to see Congress and the President end 2016 on a positive note by providing a boost in funding for important biomedical research priorities.

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Share Your ACA Story

We at NCCS are carefully monitoring the transition to the Trump administration and what it means for cancer survivors, patients, and families. We need YOUR help to identify stories of cancer survivors who have benefited from the ACA, so we can share these with policymakers and protect the important provisions of the ACA that help cancer survivors.

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Cancer Moonshot Blue Ribbon Panel

Webinar Video: “Cancer Moonshot – Symptom Management and Funding”

This week, NCCS hosted the latest CPAT webinar, Cancer Moonshot: Symptom Management and Funding. The featured presenters were Deborah K. Mayer, PhD, RN, AOCN, FAAN; and MK Holohan, JD. Dr. Mayer is the Director of Cancer Survivorship at the UNC Lineberger Cancer Center and a member of the Cancer Moonshot Blue Ribbon Panel. Ms. Holohan […]

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NCCS Marks 30 Years of Cancer Survivorship Advocacy

On October 13, 2016, the National Coalition for Cancer Survivorship (NCCS) recognized its 30th anniversary of advocating to improve cancer care. Current and past NCCS staff and board members, cancer survivors, caregivers, and representatives from throughout the cancer community attended to commemorate this milestone. Today as the nation’s oldest survivor-led advocacy organization, the event highlighted […]

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NCCS

NCCS’ Paper on Oncologist-Patient Communication Published in Evidence-Based Oncology Journal

Earlier this year, the National Coalition for Cancer Survivorship (NCCS) conducted focus groups with patients and oncologists to gain insight into this critical relationship, hear what patients and physicians consider good communication, and determine what strategies could improve effective communication. An article describing the learnings from the focus groups was published in the October 2016 […]

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NCCS Presents the Inaugural Ellen Stovall Award to Douglas W. Blayney, MD, FACP (Video)

At the National Coalition for Cancer Survivorship’s (NCCS) 30th Anniversary Reception on October 13, 2016, NCCS presented the inaugural Ellen Stovall Award for Leadership in Patient-Centered Care. The award was created to honor former NCCS CEO Ellen Stovall, who led the organization for more than twenty years and passed away in January 2016 from complications […]

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Cancer Moonshot Blue Ribbon Panel

Cancer Moonshot Blue Ribbon Panel Recommends Research to Minimize Debilitating Side Effects of Cancer Treatment

Today, the Cancer Moonshot Blue Ribbon Panel released ten recommendations to accelerate progress in cancer research. One recommendation is for symptom management research to minimize the debilitating side effects of cancer treatment. The recognition of the toll cancer treatment takes on survivors, during treatment and for the rest of their lives, is significant, and we […]

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NCCS Comments on CMS’s Proposed Revisions to the 2017 Physician Fee Schedule

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed revisions to the 2017 Physician Fee Schedule. Our comments noted our support for the Oncology Care Model, but acknowledged that only a minority of cancer care providers and cancer patients will be part of this model. Therefore, changes to the […]

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NCCS Comments on the FDA’s PDUFA Proposed Commitment Letter

NCCS submitted comments to the Food and Drug Administration (FDA) on the letter representing the agreement between FDA and regulated industry on goals for the re-authorization of the Prescription Drug User Fee Act (PDUFA VI). NCCS participated in the PDUFA stakeholder meetings held over the last year, and we support the role […]

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Highlights from the 2016 CPAT Symposium and Hill Day

In June, over 50 patient advocates gathered in Washington, D.C. to take part in the NCCS 2016 Cancer Policy & Advocacy Team (CPAT) Symposium and Hill Day. Days One and Two Attendees heard and participated in a number of informational presentations, including “Current Issues in Cancer Care: The Economics of the Cancer Care System,” “Communications […]

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NCCS Comments on Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) Proposed Rule

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule on the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA). Our comments focus on the role of consumers in identification, development, and endorsement of quality measures. As health care delivery and payment transition from a volume-based system, it […]

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NCCS Joins Letter to Reagan-Udall Foundation Regarding the Expanded Access Navigator Program

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Reagan-Udall Foundation regarding the Draft Project Proposal for the Expanded Access Navigator for Individual Patient Access. In our letter, we commend the revisions to guidance documents, FDA educational materials, and the FDA website related to expanded access and […]

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News You Didn’t Hear From ASCO’s Annual Meeting

We are nearing the end of the 2016 ASCO Annual Meeting in Chicago and looking forward to Vice President Joe Biden’s address on the National Cancer Moonshot Initiative this afternoon. The ASCO Annual Meeting provides updates on treatment advances and is followed by patients, physicians, biotech companies, and investors. Immuno-oncology is once again the hot […]

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Join the NCCS Cancer Policy & Advocacy Team: Empowering Those Touched by Cancer to Change Cancer Care

If you have ever wanted to use your cancer journey—either as a survivor or as a caregiver—to make a difference, you are invited to join the NCCS Cancer Policy & Advocacy Team (CPAT)!  Driven by the energy and experiences of the CPAT Steering Committee, CPAT provides cancer survivors and caregivers with tools and training that […]

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A Voice for Cancer Survivors in the PDUFA Stakeholder Meetings

In 1992, Congress passed the first Prescription Drug User Fee Act (PDUFA), a law that allows the Food and Drug Administration (FDA) to collect fees from drug companies that apply to the FDA for approval to market their drugs for specific medical conditions, e.g., a chemotherapy drug for ALK-positive lung cancer. All drugs that treat […]

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NCCS Joins Patient Advocates in Proposing Alternative Approach to CMS’ Part B Drug Payment Demonstration

NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare and Medicaid Services (CMS) on its proposed Part B drug payment demonstration project. Over many years, the CLC has advocated reforms in Medicare reimbursement for cancer care, to support the delivery of evidence-based care that […]

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CMS’ Hospital Compare Star Ratings a Valuable Tool for Cancer Survivors to Make Informed Decisions About Their Care

The Centers for Medicare and Medicaid Services (CMS) announced that they are postponing the release of their Hospital Compare Star Ratings. This is an unfortunate delay, as these ratings will serve as a valuable tool for cancer survivors and their families to have the information necessary to make informed decisions about where they receive care. […]

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Watch the Complete Video Recording of the Ellen Stovall Tribute Service

On February 24, 2016, a tribute to celebrate the life and legacy of Ellen Stovall was held at the Carnegie Institution for Science in Washington, D.C. Family, friends, and colleagues shared their touching memories about a woman who was dedicated to her family, a three-time cancer survivor, and a tireless advocate on behalf of all […]

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Ellen L. Stovall

Join NCCS to Celebrate the Life and Legacy of Ellen Lewis Stovall

The National Coalition for Cancer Survivorship invites you to celebrate the life and legacy of Ellen Lewis Stovall. The tribute will be held on Wednesday, February 24, 2016 at the Carnegie Institution for Science in Washington, DC at 3:00pm. The address for the Carnegie Institution for Science: 1530 P Street NW Washington, DC 20005 Valet […]

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ASCO Announces Creation of Ellen L. Stovall Award

The American Society of Clinical Oncology (ASCO) today announced the creation of the Ellen L. Stovall Award and Lecture for Advancement of Cancer Survivorship Care, intended to recognize and promote the work of pioneers and leaders in the growing field of survivorship. The annual award will honor Ellen’s contributions to the cancer survivorship movement and […]

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Honoring Ellen Stovall, a Hero in Cancer Advocacy

A note from NCCS CEO Shelley Fuld Nasso: Dear Friends, I write to you with the devastating news that the cancer community lost a hero this week. Our dear friend and colleague, Ellen Stovall, passed away on January 5th due to cardiac complications related to her cancer treatments. A 44-year survivor of three cancer diagnoses, […]

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Ellen Stovall headshot

Remembering Ellen Stovall: Arrangements Announcement

To all of Ellen’s friends and family, here are the plans for the coming week. Funeral services for Ellen Stovall will be livestreamed at 1 PM on Sunday, January 10 from Congregation Beth Israel in Honesdale, PA. This is the synagogue where Ellen was named, confirmed, and married. She is going home. Click this link LIVESTREAM, […]

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Ellen Stovall: One Person Can Make a Difference

From 1992 to 2008, Ellen Stovall was the president and CEO of NCCS, the oldest survivor-led organization advocating for quality cancer care for all Americans. This video, filmed and produced in 2008, features interviews from NCCS co-founders Dr. Patti Ganz and Dr. Fitzhugh Mullan, Dr. Julia Rowland, Dr. Zeke Emanuel, the late General H. Norman […]

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Remembering Ellen Stovall: A Message from Sandy Welton, Chairman of the Board of NCCS

With a heavy heart I write to the many friends and admirers of Ellen Stovall and NCCS about her passing on January 5, suddenly from cardiac complications due to her cancer treatments. To many of us—likely thousands—she was a trustworthy friend, a mentor, a collaborator, a visionary. Ellen was all of this and more, and […]

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Event Announcement: Attend An Evening for Cancer Survivors & Caregivers in San Francisco on January 14th

A special event for cancer survivors and caregivers will be taking place on January 14 from 6:30 PM to 9:00 PM at the San Francisco Marriott Marquis. An Evening for Cancer Survivors & Caregivers is presented by ASCO and the Conquer Cancer Foundation in collaboration with CancerCare, Cancer Support Community, LIVESTRONG, and the National Coalition […]

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Celebrating the 2015 NCCS Focus on the Care Honorees in Pictures and Video

Last week we celebrated two individuals how have made cancer care better for survivors and their families—Dr. Richard Pazdur and Ellen Goodman. We were joined by survivors, advocates, researchers, innovators, and friends at our 2015 Focus on the Care reception in Washington, DC on Wednesday, October 21, 2015. In addition to our special attendees and […]

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NCCS Celebrates “Focus on the Care” Reception in Honor of Dr. Richard Pazdur and Ellen Goodman

Last night survivors, advocates, researchers, innovators, and friends gathered at our 2015 Focus on the Care reception in celebration of two honorees who have used their unique talents to help the millions of people affected by cancer.  We are grateful for all who attended to show their support for Dr. Richard Pazdur and Ellen Goodman—two […]

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Announcing Two New Additions to the NCCS Leadership Team: An Introduction from Our CEO

Dear Friends, I am thrilled to announce two new additions to the NCCS leadership team, Elena Jeannotte and Christin Engelhardt. They both bring unique skills and experiences that will support our mission as we work towards making cancer care better for survivors and their loved ones. Elena Jeannotte joined NCCS as the Director of Philanthropy this […]

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NCCS to Honor Dr. Richard Pazdur and Ellen Goodman at “Focus on the Care” Reception

Silver Spring, MD — The National Coalition for Cancer Survivorship will host a reception to honor Dr. Richard Pazdur and Ellen Goodman on Wednesday, October 21st in Washington, DC.  Survivors, friends, advocates, health providers, researchers, policymakers, and members of the press are invited to attend as we celebrate these individuals who have made cancer care […]

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Logistic Toxicity and Administrative Burdens for Cancer Survivors and Caregivers

There are many types of toxicities cancer patients face in their treatment. We hear most about the physical toxicities of treatment – nausea, pain, fatigue, heart damage, etc. Fortunately, the non-physical toxicities are getting more attention by physicians, policymakers, and patient advocates. Dr. Yousuf Zafar (@yzafar) has made the term “financial toxicity” – the crippling […]

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Advocates from Across the US Discuss Key Survivorship Issues at Cancer Policy Advocate Training

Last week, advocates from across the country came together for the NCCS Cancer Policy Advocate Training (CPAT). Participants spent two days being trained on the most pressing policy issues affecting cancer survivorship care in the United States. The program agenda focused on the needs of cancer survivors from diagnosis to treatment and through long-term survivorship […]

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Bipartisan Bill to Improve Cancer Care Is Introduced in House by Representatives Capps and Boustany

Planning Actively for Cancer Treatment (PACT) Act (H.R. 2846) would enhance care of millions of Medicare patients Washington, D.C. – Congresswoman Lois Capps (D-CA) and Congressman Charles Boustany, Jr., M.D., (R-LA) today introduced the Planning Actively for Cancer Treatment (PACT) Act (H.R. 2846), which would significantly improve the quality and coordination of care for Medicare […]

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NCCS

Our Response to the Recent Allegations of Misuse of Donor’s Gifts by Four Cancer Charities

This week, we learned the heartbreaking news that four cancer charities have been accused of misusing donor’s gifts, spent lavishly on inappropriate expenses, and did little to support the cancer patients they claimed to help. On behalf of our colleagues in the cancer community, and the millions of cancer survivors and caregivers, we find this breach […]

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NCCS Joins Other Advocates in Endorsing Bipartisan Medical Debt Relief Act of 2015

This week NCCS joined a diverse group of advocacy groups in endorsing the bipartisan Medical Debt Relief Act of 2015 (H.R. 2362). Medical debts can remain on patients’ credit scores for up to seven years, even after they have been paid or settled, lowering his or her credit score and dramatically affecting the ability to […]

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Join Us: “Patient-Care Team Communication: How Can the Survivor Prepare to Manage a Lifetime of Care?” Webinar

The National Coalition for Cancer Survivorship is hosting a free webinar titled, “Patient-Care Team Communication: How Can the Survivor Prepare to Manage a Lifetime of Care?” on Wednesday, April 29 from 3:00pm-4:30pm EDT as part of our Cancer Policy Advocate Training (CPAT) program. The CPAT program aims to train patient advocates on pressing cancer policy issues. […]

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National Coalition for Cancer Survivorship Joins the Health Care Payment Learning and Action Network

Today the National Coalition for Cancer Survivorship (NCCS) joined the Health Care Payment Learning and Action Network and announced its goal in support of alternative payment models that will foster better, more patient-centered cancer care for the nation’s more than 14 million cancer survivors. NCCS Board Chair and cancer survivor, Michael Kappel, attended the inaugural […]

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Journey Forward and ERS Advance Survivorship Care Planning Through Data Integration

Data integration solution addresses one of the barriers associated with creating Care Plans for cancer survivors Journey Forward, a leader in survivorship care planning, and Electronic Registry Services (ERS), a leading provider of cancer registry software, today announced a successful implementation that enhances the use of patient data in after-care plans. Specifically, this enables data […]

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The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients

The National Coalition for Cancer Survivorship (NCCS) applauds the release by the Centers for Medicare and Medicaid Services (CMS) of the Oncology Care Model, a multi-payer program with the goal of providing cancer patients with higher quality, better coordinated care, at a lower cost. The Oncology Care Model builds on the current fee-for-service system for […]

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NCCS CEO Shelley Fuld Nasso Introduces Our New Blog Series

This year, NCCS and a diverse group of guest contributors will revisit the Imperatives for Quality Cancer Care as published in 1995 and evaluate progress made to date in achieving the principles proposed and ensuring that they guide the cancer care experience. Each month, we will review and discuss one of the 12 principles.  We […]

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Announcing a New Blog Series: “The Imperatives for Quality Cancer Care” 20 Years Later

Read posts from the new blog series: “The Imperatives for Quality Cancer Care” 20 Years Later In 1995, NCCS published Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), the culmination of an inclusive, community-based process.  Adopted at the First National Congress on Cancer Survivorship, the Imperatives represented the community’s first look at […]

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The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award

For more than twenty years, the National Coalition for Cancer Survivorship (NCCS) had the privilege of adapting our friend and colleague, Jessie Gruman’s important work into the development of the cancer policy work that we engage in. Jessie’s vision of patient engagement was always ahead of its time, and her books and blogs and participation […]

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NCCS Policy Comments: Recommending Cancer Survivorship as a Topic for FDA Patient-Focused Drug Development Meetings

Last week, NCCS submitted comments to the U.S. Food and Drug Administration (FDA) regarding the series of patient-focused drug development meetings that have been convened and the list of disease topic meetings scheduled for 2016-2017. In 2013, FDA convened a patient-focused drug development meeting related to lung cancer and has plans to convene a breast […]

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NCCS Offers Policy Comments: Strategies for Increasing Patient Participation in FDA Review Activities

The Food and Drug Administration Safety and Innovation Act (FDASIA) authorized a patient-focused drug development program, and in the years since enactment, the U.S. Food and Drug Administration (FDA) has implemented certain initiatives of the patient-focused program. In recent weeks, FDA has requested feedback regarding patient-focused activities to date and recommendations about future efforts and […]

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Speaking to the Needs of Patients Living with Advanced Cancers and Honoring Cancer Stories with Cancerversary

Recently, NCCS had the honor of celebrating the work and advocacy of two amazing individuals. Susan Gubar, the author of The New York Times blog “Living with Cancer,” received the Natalie Davis Spingarn Writer’s Award, and Lillie Shockney was awarded the Catherine Logan Award for Service to Survivorship. We encourage those interested in survivorship issues […]

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NCCS to Honor Two Inspiring Advocates at Focus on the Care Event in Washington, DC

While We Hope for a Cure, We Must Focus on the Care. Please join us on Wednesday, November 19, 2014, as we celebrate recent accomplishments and recognize two remarkable people who have made extraordinary contributions to improving the quality of cancer care and to elevating the conversation about living well with cancer. What:         Focus on […]

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A Tribute to Survivorship and a Happy Cancerversary to Our Friend and Colleague

Many of us who are cancer survivors mark our calendars with days, months, and fortunately for some of us, with years. We at NCCS have used the word “Cancerversary” to acknowledge these passages of time, i.e., the day of diagnosis; the last day of treatment; the first month, the first year, and decade(s).  One such […]

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An Updated Survivorship Care Planning Template and Identifying Barriers to Implementation

Recently, the American Society of Clinical Oncology (ASCO) released an updated cancer survivorship care planning (SCP) template—news that was captured by several medical online news outlets including Healio, Medscape, and Cancer.net. Survivorship care planning is a process of cancer care delivery that NCCS has advocated for over the last 20 years. In follow-up to a […]

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Ellen Stovall Presents the Patient Perspective on Overtreatment at the ASCO Quality Care Symposium in Boston

On October 17th, NCCS Senior Health Policy Advisor Ellen Stovall will be presenting the patient perspective on overtreatment at the ASCO Quality Care Symposium in Boston. Ellen will be discussing the Choosing Wisely® campaign, an initiative of the ABIM Foundation intended to help physicians and patients engage in conversations to reduce overuse of tests and […]

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Two Free Apps Help Manage Cancer Symptoms and Coordinate Care

Two new free mobile apps help people facing cancer to better manage the disease by learning how to deal with certain symptoms, and coordinate their care after cancer treatment has ended. Self-Care During Cancer Treatment is an app provided by Empowerment and Action for Cancer Care, an alliance between WellPoint and Genentech. This app provides […]

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Celebrating Hope and Community at the Dempsey Challenge in Lewiston, Maine

Two weeks ago I was able to represent NCCS at the Dempsey Challenge with the Amgen Breakaway from Cancer partners. Breakaway from Cancer (BFC) is a national initiative founded in 2005 by Amgen which seeks to increase awareness of the important resources available to people affected by cancer—from prevention to education and support to financial […]

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NCCS Offers Comments to the Centers for Medicare and Medicaid Innovation on their proposed Oncology Care Model

Click here to view all of NCCS’ policy comments. Recently, NCCS submitted comments to the Center for Medicare and Medicaid Innovation on its proposed Oncology Care Model (OCM), an episode-based payment model that emphasizes care planning and coordination and cancer care system transformation.   The OCM represents an important step forward in encouraging patient-centered cancer care, […]

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NCCS and CLC Policy Comments: 2015 Physician Fee Schedule

Recently, NCCS joined colleagues in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare and Medicaid Services (CMS) on the 2015 Physician Fee Schedule, which governs payments to physicians for services provided to Medicare patients. NCCS and the CLC have applauded efforts by CMS to strengthen care planning and coordination through […]

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Lilly Oncology On Canvas

NCCS Invites Washington, DC Residents to Create a Community Art Mural to Honor Those Touched by Cancer

Join us Saturday, August 23, from 9am to 4pm, between the Lincoln Memorial and the Reflecting Pool in Washington, DC. “When a picture of a butterfly appeared… On my mom’s hospital room door, I knew. The next day, My mom, a never-smoker, Passed away from lung cancer. Months later, I became a runner. I ran […]

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lilly oncology on canvas

New Deadline for 2014 Lilly Oncology On Canvas Art Competition Announced

The Lilly Oncology On Canvas: Expressions of a Cancer Journey Art Competition and Exhibition competition was created by Lilly Oncology and presented in partnership with the National Coalition for Cancer Survivorship (NCCS) to help people affected by cancer cope with the emotional side of the disease. We are pleased to announce that we have extended the […]

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A New Addition to Our Policy Team: Kelsey Nepote’s First Assignment with Alliance for Childhood Cancer Action Days

On Monday of last week it was with great pleasure that I started in my new position at NCCS as Policy and Advocacy Manager. My first assignment was to attend the Alliance for Childhood Cancer Action Days, which NCCS first reported on in June. This two-day event had significant meaning to me personally as my […]

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Take Action: The Alliance for Childhood Cancer “2014 Childhood Cancer Action Days”

A diagnosis of childhood cancer is devastating and impacts families for many years. While we have seen progress in survival for some types of childhood cancer, it remains the number one cause of death by disease for children in our country. Moreover, of the nearly 380,000 survivors of childhood cancer now living in the U.S., […]

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It Takes a Team – Connecting with Survivors at the Amgen Tour of California

Last week, four members of the NCCS team traveled from our home office outside of DC to join our Breakaway from Cancer partners for eight stages of an outdoor festival at the Amgen Tour of California. Our work with Breakaway from Cancer is an opportunity to get the word out about the many resources that […]

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NCCS/AEI Co-Hosted Event to Be Streamed Live

The National Coalition for Cancer Survivorship and the American Enterprise Institute (AEI) will co-host a symposium,  “Putting the Cancer Patient First: Payment Reform in an Age of Personalized Cancer Care.” Friday, February 28, from 8:30 a.m. to 12:30 p.m. at the American Enterprise Institute Conference Center in Washington, DC. For those unable to attend, the event will be streamed […]

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lilly oncology on canvas

Announcing the Launch of the 2014 Lilly Oncology On Canvas Art Competition and Exhibition

Today Lilly Oncology and the National Coalition for Cancer Survivorship (NCCS) announced the launch of the 2014 Lilly Oncology On Canvas: Expressions of a Cancer Journey Art Competition and Exhibition. The biennial competition invites individuals from the United States and Puerto Rico, who were diagnosed with any type of cancer — as well as their families, friends, […]

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NCCS 2013 Quality Cancer Care Timeline of Accomplishments

In 2013, the National Coalition for Cancer Survivorship (NCCS) represented the patient perspective in national meetings, convened policy experts and thought leaders, submitted comments on federal policies, developed tools to address gaps in cancer care planning, advocated for quality cancer care, and championed legislation that would give Medicare beneficiaries access to cancer care planning and coordination. NCCS […]

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NCCS Names Shelley Fuld Nasso as CEO

The National Coalition for Cancer Survivorship (NCCS) announces the appointment of Shelley Fuld Nasso as Chief Executive Officer. Fuld Nasso previously served as Senior Director of Public Policy at NCCS and with her appointment as CEO, will assume responsibility for executing NCCS’ efforts to ensure that improving the quality of cancer care in the United […]

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NCCS Announces Cancer Policy Advisors

Today the National Coalition for Cancer Survivorship (NCCS) announces the appointment of a group of leaders in the oncology field to serve as Cancer Policy Advisors. The slate of advisors includes leading researchers, oncologists, scholars, payers, and cancer center and survivorship program directors, who will provide guidance to NCCS as it represents cancer patients and […]

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IOM Report Released Today, “Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis”

Today, the Institute of Medicine (IOM) released its report, “Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis.” According to the IOM, the American cancer care system often is not patient-centered, does not provide well-coordinated care, and does not encourage evidence-based treatment decisions. NCCS is a sponsor of the IOM report, […]

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NCCS Announces Special Event — How Does the Media Impact Perceptions of Cancer and Cancer Care?

The media — broadcast, social media, print, or blogs — can have a transformative influence on  how cancer patients and their families receive information about their disease, navigate difficult choices about treatment, and make decisions about their lives after cancer. This year, NCCS will host a special panel discussion about how cancer is covered in media and entertainment, […]

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Shelley Fuld Nasso of NCCS Is Panelist at FDA Lung Cancer Meeting

Shelley Fuld Nasso, NCCS Senior Director of Policy, was a panelist at the June 28, 2013, Food and Drug Administration (FDA) meeting on patient-focused lung cancer drug development.  Ms. Fuld Nasso offered advice to FDA about strategies for incorporating patient needs and preferences in lung cancer drug development.    She concentrated her remarks on the need […]

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Bipartisan Bill to Improve Cancer Care is Introduced in House by Representatives Capps and Boustany

Washington, D.C. – Congresswoman Lois Capps (D-CA) and Congressman Charles Boustany, Jr., M.D., (R-LA) today introduced the Planning Actively for Cancer Treatment (PACT) Act (H.R. 2477), which would significantly improve the quality and coordination of care for Medicare patients with cancer. The bill is the top federal policy priority of the National Coalition for Cancer […]

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Journey Forward™ Program Is Finalist in the Crowds Care 4 Cancer Challenge

We are pleased to announce that Journey Forward’s My Care Plan is one of three finalists in the Crowds Care 4 Cancer Challenge supported by the Office of the National Coordinator for Health Information Technology (ONC), in conjunction with the National Cancer Institute (NCI), to drive health innovation forward. Journey Forward is a combined effort of the National Coalition for Cancer Survivorship (NCCS), WellPoint, […]

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Shelley Fuld Nasso Joins NCCS as Director of Public Policy

Shelley Fuld Nasso has joined the National Coalition for Cancer Survivorship (NCCS) as Senior Director of Policy, with responsibility for leading public policy activities, patient education, and other programs. Ms. Fuld Nasso previously served as Director of Public Policy and Director of Public and Medical Affairs at Susan G. Komen for the Cure. She brings […]

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NCCS Resources Included in eHealth Initiative’s Health IT Cancer Resource Guide

The National Coalition for Cancer Survivorship is pleased to announce that the eHealth Initiative has included three of NCCS’s patient resources in the recently launched Health IT Cancer Resource Guide. The eHealth Initiative is a non-profit organization whose mission is to drive improvement in the quality, safety, and efficiency of healthcare through information and technology. The national organization […]

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Journey Forward recognized for extraordinary contribution with Health Impact Award

Journey Forward has received the Wellsphere’s Health Impact Award for its extraordinary contributions to cancer survivors. The award acknowledges that the program has increased progress in areas such as health research, understanding, empathy, inspiration, awareness, accessibility, and networking. Journey Forward is an innovative nationwide program to promote the use of Survivorship Care Plans that will help […]

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NCCS

NCCS adds care planning to Teamwork resource

NCCS has revised and updated Teamwork: the Cancer Patient’s Guide to Talking with Your Doctor booklet to include a sample treatment plan with a map to appropriate questions for each component to ensure the patient remains an active team member and decision maker in their care. A treatment summary template and sample survivorship care plan have also […]

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NCCS

NCCS receives Cardinal Health Foundation grant to improve patient safety

The National Coalition for Cancer Survivorship was selected by the Cardinal Health Foundation as one of 42 grant recipients to fund organizational programs that help U.S. hospitals, health systems and community health organizations improve the effectiveness, efficiency and excellence of patient care. The grant will help support NCCS’s efforts in using technology and mobile applications […]

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cancer survival toolbox

NCCS updates two long-standing publications; begins offering Cancer Survival Toolbox End of Life program as a standalone

NCCS has recently updated two of its long-standing publications: one that addresses employment rights as a cancer survivor and the other that helps cancer patients understand and define their health insurance options and rights. The organization has also recognized that during the final stage of survivorship, having important discussions and making deliberate decisions can help patients […]

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NCCS

NCCS sponsors IOM study to demographic issues in quality of cancer care

NCCS, along with 11 other organizations sponsored an Institute of Medicine (IOM) consensus study: Improving the Quality of Cancer Care: Addressing the Challenges of an Aging Population. On May 21, 2012, the committee began to examine issues in the quality of cancer care with a specific focus on the demographic changes that will rapidly accelerate the […]

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NCCS

NCCS participates in roundtable meeting to discuss future of Health IT

NCCS was recently invited to participate in a roundtable discussion on the potential role of Health Information Technology in cancer care and care coordination. Senior Health Policy Advisor Ellen Stovall attended the June 7th meeting organized by the National Cancer Institute at NIH, the eHealth Initiative, and Dr. Farzad Mostashari, the National Coordinator for Health […]

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NCCS

NCCS applauds the Supreme Court decision upholding the Affordable Care Act

The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all types of cancer, commends the Supreme Court for affirming the constitutionality of the primary provisions of the Affordable Care Act. “Many cancer survivors struggle to get timely, high-quality care that they can afford, and the Affordable Care Act will help them […]

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It takes a team to Breakaway from Cancer

What an incredible tour it’s been for us! We’ve had the opportunity to meet some really amazing survivors, caregivers and loved ones, and hear many inspiring stories of survivorship along the way. It truly does take a team to Breakaway from Cancer – and NCCS is privileged to be a part of Amgen’s initiative to connect […]

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Four Californians selected as Breakaway from Cancer Champions to be honored during Amgen Tour of California

Four individuals who have made a difference for others affected by cancer in their communities have been selected as Breakaway from Cancer® Champions. They will be honored at the seventh consecutive edition of the Amgen Tour of California as part of Amgen’s Breakaway from Cancer initiative. The Amgen Tour of California is America’s largest and […]

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NCCS Pocket Cancer Care Guide mobile app selected as an Official Honoree of the 16th Annual Webby Awards

The National Coalition for Cancer Survivorship (NCCS) Pocket Cancer Care Guide mobile app has been selected as an Official Honoree of the 16th Annual Webby Awards. The mobile app, designed for cancer survivors and caregivers, allows users to quickly and easily build lists of practical questions to guide conversations with their doctors and nurses. This […]

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lilly oncology on canvas

Fifth Lilly Oncology on Canvas Art Competition invites all touched by cancer to share their cancer journeys

Competition Expands to Canada Get your canvases, paintbrushes and cameras ready — the subject is cancer and you are the storyteller. Lilly Oncology and the National Coalition for Cancer Survivorship (NCCS) today announced the launch of the 2012 Lilly Oncology On Canvas: Expressions of a Cancer Journey Art Competition and Exhibition. The biennial competition invites […]

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NCCS

NCCS applauds establishment of cancer treatment planning and care coordination reimbursement codes

NCCS commends the action of the Centers for Medicare & Medicaid Services (CMS) in establishing two new Healthcare Common Procedure Coding System (HCPCS) codes for cancer treatment planning and care coordination. The codes, for treatment planning and care coordination for initial treatment and a change of treatment regimen, will go into effect on April 1, […]

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NCCS

The National Coalition for Cancer Survivorship Supports Broad Adoption of Electronic Health Records

The National Coalition for Cancer Survivorship (NCCS) announced its support of the two final rules issued by the Centers for Medicare and Medicaid Services (CMS) and the Office of the National Coordinator for Health Information Technology (ONC) for the electronic health record incentive programs at a briefing hosted by the U.S. Department of Health and […]

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NCCS

The National Coalition for Cancer Survivorship Applauds Healthcare Reform

The National Coalition for Cancer Survivorship (NCCS), a leading non-profit cancer advocacy organization, praises members of Congress for the passage of the healthcare reform bill. The bill includes key provisions that protect patients, bringing America’s 12 million cancer survivors and the 1.5 million more that are diagnosed each year closer than ever to getting the […]

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NCCS

Kennedy Book, President of A&E Television Networks, To Receive Awards NCCS Gala

NCCS has announced the honorees for its Rays of Hope Gala, which takes place in Washington, D.C., on Wednesday, April 28th, 2010. Members of the late Senator Edward M. Kennedy’s family will accept an award for the memoir, True Compass. Additionally, Abbe Raven, President & CEO of A&E Television Networks, will be recognized for taking […]

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NCCS Joins the Commission on Cancer

The National Coalition for Cancer Survivorship (NCCS) has accepted an invitation to join the Commission on Cancer (CoC), a multidisciplinary organization administered by the American College of Surgeons dedicated to reducing the morbidity and mortality of cancer through education, standards setting, and the monitoring of quality of care. The CoC has invited NCCS, a key […]

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Did you know the Cancer Survival Toolbox is available in Spanish?

The award-winning Cancer Survival Toolbox®, which has helped thousands of cancer survivors and their families navigate the complexities of a cancer diagnosis for more than 10 years, is available in Spanish-language CDs and MP3 files. New hematologic programs that focus on living with multiple myeloma and non-Hodgkin lymphoma are also available in Spanish. This information was recently featured in a blog […]

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It Takes a Team to “Breakaway from Cancer”

You don’t have to fight cancer alone. Amgen’s Breakaway from Cancer initiative aims to raise awareness of the comprehensive array of resources available to cancer patients – from prevention to education and support to financial assistance and survivorship. For the fourth consecutive year, NCCS is a charitable partner of Breakaway from Cancer. Other partners include […]

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Katie Couric One of 20 Named “Rays of Hope” for Cancer Survivorship

Last night, the National Coalition for Cancer Survivorship (NCCS) recognized 20 individuals and groups that have made extraordinary contributions to cancer survivorship. NCCS’s “Ray of Hope” awards were given to Rep. Lois Capps, Katie Couric, Sam Donaldson, Dr. John Durant, Dr. Harold Freeman, Scott Hamilton, former Sen. Connie Mack III, Pearl Moore, Dr. Fitzhugh Mullan, […]

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NCCS Presents Awards to those with the Passion for Cancer Survivorship

On April 19, the National Coalition for Cancer Survivorship (NCCS) celebrated the individuals and organizations who share a passion for improving quality cancer care at its annual Ribbon of Hope® Awards Gala at the Andrew W. Mellon Auditorium. The honorees included actress and model, Karen Duffy; Centers for Medicare & Medicaid Services (CMS) Administrator, Dr. […]

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