NCCS and the 11 other member organizations of the Cancer Leadership Council sent a letter to Congress expressing “serious concerns about the potential negative impact of tax reform legislation currently under consideration on those living with cancer.”

Three areas of concern discussed in the letter are repeal of the Affordable Care Act’s (ACA) individual mandate, repeal of the medical expense tax deduction, and potential automatic cuts to the Medicare program.

Read the full letter below.



November 16, 2017

The Honorable Orrin G. Hatch
Chairman, Senate Finance Committee

The Honorable Ron Wyden
Ranking Member, Senate Finance Committee

The Honorable Kevin Brady
Chairman, House Ways and Means Committee

The Honorable Richard E. Neal
Ranking Member, House Ways and Means Committee

Dear Chairmen Hatch and Brady and Ranking Members Wyden and Neal:

The undersigned organizations represent cancer patients, physicians and other health professionals, and researchers. We are writing to share our serious concerns about the potential negative impact of tax reform legislation currently under consideration on those living with cancer.

We are concerned about the repeal of the individual mandate of the Affordable Care Act and the elimination of the medical expense deduction and about the potential for tax legislation passage to trigger sequestration and affect Medicare spending.

  • Repeal of the individual mandate – As we have stressed in our communications with Congress regarding proposed changes to the Affordable Care Act, the protection against pre-existing condition limits and exclusions is of critical importance for cancer patients. An insurance system without those protections is an insurance system that typically excludes cancer patients from coverage or places severe limits on their access to coverage.
    The individual mandate is a complement to pre-existing condition protections, as it encourages a healthier pool of insurance enrollees and helps restrain insurance premium increases in the insurance market. We urge you to refrain from a repeal of the individual mandate in tax legislation. This action will result in loss of insurance coverage for millions of Americans, including many cancer patients. It will also result in premium increases for those who are currently in treatment for cancer and many more who have survived cancer and are dealing with the late and long-term effects of the disease. The repeal of the individual mandate in tax legislation will be a “repeal” without any effort at replacement, and we believe the market destabilization effects will be significant for cancer patients and many other Americans in the individual market.
  • Medical expense deduction – Cancer patients face serious burdens from the time of diagnosis, balancing treatment, treatment side effects, family life and responsibilities, and work. Increasingly, cancer patients and their families also face “financial toxicity,” as they cope with the costs of cancer care. Even those patients and families with insurance may face serious cost-sharing responsibilities for services covered by insurance and other costs for items and services not covered by insurance.
    Those who face a cancer diagnosis requiring multi-disciplinary care including surgery, drug therapy, and radiation therapy may easily trigger the threshold for deduction of medical expenses. In addition, there are cancer survivors facing significant expenses for monitoring and follow-up care at the same time they are re-entering the work force. For them, the medical expense deduction may also be a financial lifeline.
    We are not persuaded that increases in the standard deduction will be adequate to compensate for the loss of the medical expense deduction for cancer patients facing severe financial toxicity. We urge that the medical expense deduction be retained.
  • Sequestration and the impact on Medicare spending – More than 60 percent of cancer diagnoses occur among Medicare beneficiaries. As a result, Medicare serves as a major payer for cancer care in the United States. We are concerned that passage of tax legislation that increases deficits by $1.5 trillion over ten years will trigger sequestration. Medicare cuts of $25 billion in 2018 could be felt by those who have received a diagnosis and rely on Medicare. There is no easy or painless way to trim such substantial savings from Medicare, and the cancer community will be harmed by cuts of this magnitude.

We urge you to remember those affected by cancer and others with serious and life-threatening illnesses as you debate tax legislation. We are concerned that provisions currently under consideration will adversely affect cancer patients and that sequestration will have a significant impact on Medicare beneficiaries living with cancer.


Cancer Leadership Council

American Society of Clinical Oncology
Cancer Support Community
Fight Colorectal Cancer
Hematology/Oncology Pharmacy Association
The Leukemia & Lymphoma Society
Lymphoma Research Foundation
National Coalition for Cancer Survivorship
Ovarian Cancer Research Fund Alliance
Sarcoma Foundation of America
Susan G. Komen

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