On October 13, 2016, the National Coalition for Cancer Survivorship (NCCS) recognized its 30th anniversary of advocating to improve cancer care. Current and past NCCS staff and board members, cancer survivors, caregivers, and representatives from throughout the cancer community attended to commemorate this milestone.

Today as the nation’s oldest survivor-led advocacy organization, the event highlighted NCCS’ many contributions to changing the culture of cancer care: by replacing “cancer victim” with “cancer survivor,” creating the concept of “survivorship,” and defining someone as a “survivor” from the time of diagnosis and for the balance of life, now the norm for the cancer community. “NCCS challenged the status quo of cancer care over the past thirty years, increasing the quality of care for millions of patients and their families,” said NCCS CEO Shelley Fuld Nasso. “The need for that advocacy is as relevant as ever, and is why NCCS continues to ensure cancer care further incorporates patients’ needs and values.”

Photos from the 30th Anniversary Reception

NCCS Staff, current and former Board Members, and members of Ellen Stovall's family
NCCS Co-Founder Fitzhugh Mullan, MD speaks at the reception
NCCS Co-Founder Fitzhugh Mullan, MD speaks at the reception
NCCS Co-Founder Fitzhugh Mullan, MD speaks at the reception
Jonathan Stovall joins CEO Shelley Fuld Nasso onstage to present the award named for his mother Ellen
NCCS CEO Shelley Fuld Nasso remembers Ellen Stovall at the 30th Anniversary Reception
Jonathan Stovall & NCCS CEO Shelley Fuld Nasso present the Ellen Stovall Award to Douglas W. Blayney, MD (center)
Douglas W. Blayney, MD gives his remarks after accepting the Ellen Stovall Award
Dr. Blayney (L) and his wife Victoria (R) with a guest at the reception
Honoree Dr. Blayney talks with current ASCO Chair Daniel F. Hayes, MD
NCCS Board Members Michael Kappel and Eleanor Winter
NCCS Co-Founders Barbara Hoffman, JD and Fitzhugh Mullan, MD
Former NASW CEO and longtime NCCS collaborator Elizabeth J. Clark poses with another guest at the reception
Honoree Dr. Douglas W. Blayney with NCCS Board Members Michael Kappel (center) and Laurie Isenberg
Dr. Blayney talks to NCCS Co-Founder Fitzhugh Mullan, MD
Tim Wert (L) and Patient Advocate Foundation CEO Alan Balch, PhD (R)
NCCS CPAT member Lisa Rice talks to another guest at the 30th Anniversary Reception
Guests enjoy the 30th Anniversary Reception
NCCS Counsel Elizabeth Goss, JD and NCCS Board Member Michael Kappel
From L to R: Stephen Lewis, John Stovall, and NCCS Counsel Sam Turner
Photos by Aaron Clamage

A Look Back at 30 Years

NCCS Co-Founder Fitzhugh Mullan, MD Speaks


The NCCS founders at the founding meeting
October 27, 1986

NCCS Co-Founder and Founding President Fitzhugh Mullan, MD was at the event to deliver remarks about the milestone. Dr. Mullan was one of 22 cancer survivors who convened a three-day meeting on October 25, 1986 in Albequerque, NM. In his remarks, Dr. Mullan said, “After the electricity of coming together—sharing our experiences, sharing our passion, and our vision for a survivorship place—we formed the NCCS and went forth to make it part of the public discourse in America and the treatment experience for as many survivors, as possible.”

The meeting was soon called by many as the “Constitutional Convention” of the cancer survivor movement. The founders drafted a charter for the nascent organization, adopting a list of objectives, with the primary goals being to raise national awareness of cancer survivorship, provide a clearinghouse for materials that educate survivors on their rights, and to advocate for research in the field of survivorship.

NCCS has had many successes in working to achieve its early objectives, one of many being the publication of The Imperatives for Quality Cancer Care, which directly led to the creation of the Office of Cancer Survivorship at the National Cancer Institute. “An organization such as NCCS has existed in a changing policy environment,” Dr. Mullan said. “I think it’s fair to say we were inspired by the early AIDS activists, who were in the field already in 1986 showing how you could speak up for your illness.” He continued, “It is that same spirit of the empowered patient who brings the wisdom and the politics of the experience of having had cancer to public attention.”

Dr. Mullan also turned his eye to the future of cancer care, stating that more attention is being paid to the long-term side effects of cancer treatment, and that the treatment itself is becoming more personalized. Dr. Mullan closed with a comment about achieving equity in cancer care. He said, “Health equity and attention to the disparities of care… are part of what a health system, in a country whose arc is bending towards justice, we like to think would improve over time. And we hope the cancer survivorship movement is at the forefront of those who argue for and help a society achieve better equity and fuller coverage. So it’s been thirty good years, we expect 300 more, if cancer is around that long. We expect it to be beaten down by then. But certainly, we’ve made great progress in these thirty years.”

The Ellen Stovall Award

Also at the 30th Anniversary Reception, the inaugural Ellen Stovall Award for Leadership in Patient-Centered Care was presented to Douglas W. Blayney, MD.   Read the blog post »
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