The Cancer Care Planning and Communications Act (CCPCA), H.R. 3835
Providing Cancer Patients a Plan for Treatment and Survivorship
Congressman Mark DeSaulnier (D-CA) and Congressman Buddy Carter (R-TX) recently reintroduced the bipartisan H.R. 3835 Cancer Care Planning and Communications Act, or CCPCA. Rep. DeSaulnier is a cancer survivor and Rep. Carter is a pharmacist. Together, they share an understanding of the physical and emotional benefits of care planning for patients and their families facing a cancer diagnosis.
Most cancer patients still do not receive a written plan that explains their diagnosis, prognosis, treatments, and expected symptoms, leaving them to navigate the complexities of a cancer diagnosis without clear direction or knowing what to expect from their care. Research has confirmed that coordinated cancer care outlined in a written care plan—care that integrates active treatment and symptom management—improves patient outcomes, increases patient satisfaction, and reduces utilization of health care resources.
Pilots don’t take off without a flight pattern, and architects don’t break ground without a blueprint. Patients diagnosed with cancer are taking the journey of their life, literally, so the role of the cancer treatment plan in starting a conversation, in promoting comprehension and retention, in managing expectations and anxiety, and providing continuity across settings and episodes is so important.Participant from previous NCCS workshop on cancer care planning.
What Does CCPCA Do?
CCPCA encourages the development of a personalized cancer care plan for Medicare beneficiaries.
- Help cancer patients through the difficult process of cancer diagnosis, treatment choices, treatment management, and survivorship care by supplying them with a written plan or roadmap.
- Promote shared decision-making between patients and their cancer care teams and support informed decisions, as treatment choices are becoming increasingly complex.
- Empower patients with information necessary to help manage and coordinate their care through diagnosis, treatment, and survivorship.
CCPCA was previously introduced as the Planning Actively for Cancer Treatment (PACT) Act in past Congresses, and continues a longtime effort of the National Coalition for Cancer Survivorship to increase cancer care planning implementation throughout the country.
Webinar: CCPCA – What It Does and How to Get Involved
In this webinar, NCCS CEO Shelley Fuld Nasso talks about why the CCPCA is so important and how you can advocate for the bill while your lawmakers are at home during August recess.Watch on YouTube »
CCPCA Toolkit – Meet Your Members of Congress During August Recess
NCCS created a step-by-step guide to walk you through the process of setting up meetings with your legislators while they are at home during recess.