Cancer Care Planning and Communications ActThe Cancer Care Planning and Communications (CCPC) Act

Providing Cancer Patients a Plan for Treatment and Survivorship

Congressman Mark DeSaulnier (D-CA) and Congressman Ted Poe (R-TX) recently introduced the bipartisan Cancer Care Planning and Communications (CCPC) Act, H.R. 5160. As Reps. DeSaulnier and Poe are both cancer survivors, they understand the physical and emotional benefits of care planning for patients and their families facing a cancer diagnosis.

Most cancer patients still do not receive a written plan that explains their diagnosis, prognosis, treatments, and expected symptoms, leaving them to navigate the complexities of a cancer diagnosis without clear direction or knowing what to expect from their care. Research has confirmed that coordinated cancer care outlined in a written care plan—care that integrates active treatment and symptom management—improves patient outcomes, increases patient satisfaction, and reduces utilization of health care resources.

Pilots don’t take off without a flight pattern, and architects don’t break ground without a blueprint. Patients diagnosed with cancer are taking the journey of their life, literally, so the role of the cancer treatment plan in starting a conversation, in promoting comprehension and retention, in managing expectations and anxiety, and providing continuity across settings and episodes is so important.
Participant from previous NCCS workshop on cancer care planning.
NCCS is joined in support of the CCPC Act by 31 patient and professional organizations and 18 cancer centers.
Read the CCPC Act Fact Sheet [PDF] »

What Does the CCPC Act Do?

Care Coordination InfographicThe CCPC Act encourages the development of a personalized cancer care plan for Medicare beneficiaries.

The CCPC Act will:

  • Help cancer patients through the difficult process of cancer diagnosis, treatment choices, treatment management, and survivorship care by supplying them with a written plan or roadmap.
  • Promote shared decision-making between patients and their cancer care teams and support informed decisions, as treatment choices are becoming increasingly complex.
  • Empower patients with information necessary to help manage and coordinate their care through diagnosis, treatment, and survivorship.

The CCPC Act was previously introduced as the Planning Actively for Cancer Treatment (PACT) Act in past Congresses, and continues a longtime effort of the National Coalition for Cancer Survivorship to increase cancer care planning implementation throughout the country.

View a sample care plan [PDF]

Take Action—Contact Congress

For reference when contacting your representative, use our CCPC Act Fact Sheet [PDF].

Write Your Member of Congress

Ask your representative to co-sponsor the CCPC Act to promote cancer care planning and care coordination! Use the following form to send your representative a personalized email.

Call Your Member of Congress

Members of Congress need to hear from constituents that cancer care planning is a priority. Calling your elected officials is easy and an important way to exercise your right as a citizen. Remember that it is your elected official’s job—and his/her staff members—to listen to you, as a constituent!

Call Your Representative at (844) 257-6227
US Capitol

Some tips for the call:

  1. Ask for the staff member who covers health issues.
  2. Mention your connection to cancer, as a survivor, caregiver, provider, family member, etc.
  3. Stress the importance of cancer care planning and coordination:
    • Care planning encourages important doctor-patient discussions and a shared decision-making process.
    • Without a care plan, patients must navigate the complexities of a cancer diagnosis on their own.
    • H.R. 5160, The Cancer Care Planning and Communications Act, will ensure that every Medicare-eligible cancer patient has access to cancer care planning and coordination, which will improve cancer care and reduce inefficiencies in the system.
  4. If appropriate, share your experience with cancer care planning. If you received a care plan, how did it help you? If you did not receive a care plan, how might it have helped you?
  5. Ask your Representative to please co-sponsor the bipartisan H.R. 5160, the Cancer Care Planning and Communications Act.

After you call:

It would be incredibly helpful to know how the call went.

  • We do not sell your data to third parties—Read our Privacy Policy
  • Can you share who you spoke to in the office? Did they sound like they supported or opposed the bill? Did they request more information or any other follow up?
  • This field is for validation purposes and should be left unchanged.

More About the CCPC Act

How does the CCPC Act encourage cancer care planning?
Why is a cancer plan necessary for each patient?
Why is a new Medicare service necessary?
Supporting Organizations and Cancer Centers