Elevating Survivorship

Elevating SurvivorshipAnyone who has been touched by cancer knows that life after a diagnosis is never the same.

Survivors face many challenges, and our health care system simply isn’t geared to help people live well after the treatments are completed.

Elevating Survivorship is a patient-led initiative to improve survivorship care in the United States. Through Elevate, NCCS highlights gaps in survivorship care, improves survivorship care at the local level, and educates audiences about the need for survivorship care.

What Can You Do?

Survey slide - What I Wish I Had Known

READ

Elevating Survivorship Survey

NCCS fielded an online survey to understand cancer survivorship experiences across a range of cancer patients. Nearly 1,400 cancer survivors responded.

Learn about what we heard from cancer survivors. »

JOIN

The Cancer Policy and Advocacy Team (CPAT)

CPAT provides survivors and caregivers with tools and training to build upon their experiences to become effective advocates. It’s FREE to join, and members receive updates from NCCS with advocacy opportunities, access to a closed Facebook group, training on public policy issues and advocacy skills, and more.

Become a CPAT Member »

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Support our efforts to improve cancer survivorship.

Make your contribution today and give survivors a stronger voice.

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I wish that my health care team would address survivorship issues and long-term effects of my cancer diagnosis. At this point I am just told to call if there are any changes in the way that I feel, this leaves me feeling uneasy and uncertain about the future of my health.Survey Respondent

Elevate Leads the Way for a Better Cancer Survivorship Experience

For Survivors, Led by Survivors

Survivors’ Needs Are Unique

Nearly 17 million Americans are cancer survivors — many living with long-term physical and emotional side effects from their diagnosis, treatment, and experience. Their cancer survivorship journeys are as unique as they are — including their individual needs for quality care.

Yet, sometimes cancer survivors’ needs aren’t always available or even considered. And the care that IS available is oftentimes developed by those who don’t always know what survivors’ needs are.

That’s why NCCS developed Elevating Survivorship (also known as Elevate), a patient- and advocate-led initiative to raise awareness about survivors’ unique needs and strategies improve care at the local level. Who better to help shape opportunities, improvements, and needs for survivors than survivors themselves?

Elevate improves survivorship care by:

  • Conducting Nationwide Research to Assess Post-Treatment Needs Research
    NCCS conducted a nationwide survey of cancer survivors about their post-treatment needs and opportunities for better care, in partnership with the Association for Community Cancer Centers (ACCC). One goal of the survey was to identify if survivors who received immunotherapy treatments have distinct needs for survivorship care.

    Read the Survey Results »

  • Empowering Survivors to Make a Difference in Their Communities
    NCCS selects patient leaders using an application process to become Elevate Ambassadors. NCCS provides training, support, and networking opportunities to help Ambassadors develop and execute a plan of action for a new project idea to improve survivorship care in their community — whether at a hospital, oncology practice, community-based organization, or virtual community. There is a time commitment for this program, which also includes an in-person training in Washington, DC, for which NCCS will cover travel costs. We ask that all Ambassadors be members of our Cancer Policy and Advocacy Team (CPAT). Sign-up here if you aren’t already a member.

    Learn More About the Elevate Ambassador Program »

  • Equipping Survivors to Be a Spokesperson for Cancer Care Advocacy
    NCCS developed a Survivorship 101 presentation template for speakers to use to educate community members about cancer survivorship and the post-treatment needs of cancer survivors. Speakers can customize the presentation to include their own experience and to reflect the audience, which could include support groups, provider groups, or other community-based organizations. NCCS chooses speakers for this program.

    If you’re interested in learning more, please contact us at elevate@canceradvocacy.org.


Bookmark this page for more updates and ways we can Elevate Survivorship.
Suggestions or questions? Contact us elevate@canceradvocacy.org.

Grant funding for Elevating Survivorship provided by: Bristol-Myers Squibb, Eisai, and Takeda.