Elevating Survivorship Initiative
Nearly 16 million Americans are cancer survivors, and many live with long-term physical and emotional side effects from their cancer treatment.
As treatments improve and people with cancer live longer, more attention needs to be paid to their future health needs to improve the quality of life in survivorship. Patients who were exposed to newer types of treatment, like immunotherapy, may have additional or different needs in survivorship.
NCCS has developed Elevating Survivorship (“Elevate”) as a patient- and advocate-led initiative to improve survivorship care in the United States. Through Elevate, NCCS seeks to describe gaps in survivorship care, improve survivorship care at the local level, and educate audiences about the need for adequate post-treatment survivorship care.
Elevate includes several components:
- Survivorship Survey
In the fall of 2018, NCCS conducted a nationwide survey of cancer survivors about their needs in post-treatment survivorship care and gaps in survivorship care. One goal of the survey was to identify if survivors who received immunotherapy treatments have distinct needs for survivorship care. NCCS is partnering with the Association for Community Cancer Centers (ACCC), which also surveyed its provider members. The results of the two surveys will be published and shared in the spring of 2019.
- Elevate Ambassadors
NCCS selects patient leaders using an application process to become Elevate Ambassadors. NCCS provides training, support, and a virtual learning collaborative to help Ambassadors develop and execute a plan of action for a new project idea to improve survivorship care in their community, whether at a hospital, oncology practice, community-based organization, or virtual community. The time commitment for Ambassadors is extensive and includes an in-person training in Washington, DC, in the spring, for which NCCS will cover travel costs.
Please note that Ambassadors were selected for the 2019 pilot program. We hope to offer the opportunity again in 2020, and if interested please return to this website early in 2020 for application instructions.
If you are not already a member of our Cancer Policy and Advocacy Team (CPAT), complete this questionnaire to sign up for free and you’ll be notified by email about future Elevating Survivorship advocacy opportunities.
- Survivorship 101 Speakers Bureau
NCCS developed a Survivorship 101 presentation that Speakers can use to educate community members about cancer survivorship and the post-treatment needs of cancer survivors. Speakers can customize the presentation to include their own experience and to reflect the audience, which could include support groups, provider groups, or other community-based organizations. NCCS will provide the template and training/support to deliver the presentation.
There is no set time commitment for Speakers—it’s up to Speakers to identify opportunities/audiences to deliver the Survivorship 101 presentation in their community and provide feedback to NCCS.
- Visiting Experts Program
NCCS will partner with ACCC to deliver a Visiting Experts program to ACCC members in 2019, with details to be announced.
Elevate Informational Webinar
On January 15, 2019, NCCS hosted a webinar to provide additional details about 2019 advocacy opportunities for the “Elevating Survivorship” initiative. NCCS CEO Shelley Fuld Nasso and Advocacy Manager, Kelsey, Nepote, talked in more detail about the Elevate Ambassadors and the Survivorship 101 Speakers Bureau, and also answered several questions submitted during the chat.
If you have any questions about the Elevate Initiative, please contact Elena Jeannotte at firstname.lastname@example.org.