We aim to make the Health Care Roundup a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone. Your feedback is always welcome to make our content more useful to you. Please send comments to feedback@canceradvocacy.org.

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HEALTH CARE HIGHLIGHTS

NCCS Updates

Register for First-Ever Virtual CPAT Symposium

Cancer survivors’ stories can shape how decision makers provide quality cancer care to millions of cancer survivors. That is why NCCS invites cancer advocates from around the country to register for the annual Cancer Policy and Advocacy Team (CPAT) Symposium virtually, on June 15-16 and June 22-23 from noon to 3 p.m. ET, including a virtual Hill Week June 22-26.

We will host three different tracks so attendees choose their own Symposium experience—whether they are a brand-new advocate or a seasoned Symposium attendee. Attendees will also:

  • Hear from health care and policy experts about managing stress and anxiety, how to “return” to work, and the future of cancer care;
  • Participate in a roundtable on what survivorship means for people with metastatic cancer and help shape the conversation around metastatic survivorship;
  • Hear from Washington insiders about health policy during the COVID-19 pandemic;
  • Prepare for and attend meetings with Congressional staff through the virtual Hill Week June 22-26.

Register for this event today »

We encourage you to invite others to register. The Symposium is exclusive to CPAT members, which is free and easy to join!


NCCS Project Aims to Gain Cancer Survivors’ Insights on Telehealth

This month, NCCS launched a project to identify and share cancer patients’ and survivors’ perspectives on telehealth—the use of telephone or video conferencing for medical appointments—in cancer care. The COVID-19 pandemic has led to dramatic and rapid increases in the adoption of telehealth, and NCCS wants to ensure patient voices are heard.

Learn More »


2020 Elevate Ambassadors Selected to Improve Survivorship Care in Local Communities

NCCS is proud to announce the selection of 14 patient advocate leaders to serve as Ambassadors for the 2020 Elevating Survivorship program. Elevate Ambassadors will receive support, mentorship, networking opportunities, and virtual training from NCCS to develop and execute a plan of action to improve survivorship care in their community—whether for a hospital, oncology practice, community-based organization, or virtual community.

Learn More »

Policy Updates

Senate Nixes Fourth COVID-19 Stimulus Package

Last week the House of Representatives passed the Health and Economic Recovery Omnibus Emergency Solutions Act, or the HEROES Act, the fourth COVID-19 stimulus package. However, Senate leadership announced it was dead on arrival and that their version “would look nothing like the House’s Democrat bill.” NCCS has been working alongside other patient groups to meet with Congressional offices to share patient priorities during the pandemic.

We were pleased to see some of these priorities were included in the House bill, including a special enrollment period for the Affordable Care Act (ACA), funding for state Medicaid programs, expansion of paid leave provisions, and assistance for people who lost employer-based coverage. We will monitor this bill as it moves through Congress and update you on provisions that will impact patients and their access to health services.


Otis Brawley, MD on Paid Family Medical Leave

Yesterday, friend of NCCS and Bloomberg distinguished professor, Dr. Otis Brawley, provided his expertise in a virtual Congressional briefing on paid family medical leave. In last month’s Health Care Roundup we included a legislative alert so that advocates could take action on this important issue and let Congress know cancer patients need to be included in paid leave.


CHART OF THE WEEK

Paid Sick Leave Could Be a Deciding Issue in November's Key House Races

Vox.com

This survey finds paid sick leave as a top issue for voters. “There are restaurant workers, there are people who work for fortune 500's who don't have a paid sick day, there's home health workers,” says Paid Leave for All Action Director Dawn Huckelbridge. “If we're not giving people these protections, we’re going to be forcing them to choose between their life and their livelihoods.”

Read More »


WHAT WE’RE LISTENING TO

Cancer Convos PodcastNCCS Podcast: "Cancer Convos." In the latest episode of “Cancer Convos,” Senior Policy Manager Lindsay Houff talks to Jamie Ledezma, an attorney who specializes in cancer rights. Jamie discusses how health policy is changing at a rapid pace, at both the state and federal levels.

A cancer survivor herself, Jamie also shares what it’s like as a patient navigating the health care system during COVID-19 and provides advice for fellow patients who are looking for answers. During the conversation, Jamie mentioned a health insurance resource page from Triage Cancer, an organization that focuses on cancer patient rights and advocacy.

Listen and Subscribe to Updates »
Listen to the Episode on SoundCloud »

Bipartisan Health Experts Send Letter to Congress

In an NPR interview, Scott Gottlieb, former head of the FDA, and Andy Slavitt, who led the Centers for Medicare and Medicaid under Obama, talk about their plan to reopen the U.S.


WHAT WE’RE READING

Major Boston Hospital Finds Dramatic Drop in Stroke, Heart Attack, and Cancer Patients During Coronavirus Pandemic

The Boston Globe

Medical visits for serious conditions such as cancer, heart attacks, and strokes have dropped by as much as 65 percent during the pandemic for Beth Israel Deaconess Medical Center. The number of patients referred to the hospital’s breast cancer and hematologic cancer clinics in April fell 65 percent and 61 percent, respectively, compared with before the pandemic. The group also discovered declines of 33 percent in heart attack patients and 58 percent in stroke patients hospitalized in March and April.

NCI Director, Dr. Sharpless tweeted a response to the article saying: “Cancer diagnoses are sharply down during the pandemic, but cancer incidence is not. This suggests we’ll see delayed diagnosis and upstaging, which could mean worse outcome. Let’s all agree to not let that happen.”

Read More »

For Cancer Patients, Anguish Grows Over Deferred Surgery as Risk Rises
National Public Radio (NPR)

Breast cancer survivor, Silver, was told her mastectomy would require another procedure to cover her wound by her oncologist. The additional surgery was considered cosmetic, according to recent standards, and therefore put her surgery on hold.

Yet, Silver felt this “nonessential” surgery was important.

"It's not necessarily considered a medical emergency by them, even though it's, like, the entire world to me," Silver says.

Read More »

Special Report Provides Guidance to Oncology Practices on Resuming Cancer Care During COVID-19 Pandemic

The American Society of Clinical Oncology (ASCO)

Earlier this week ASCO released the ASCO Special Report: A Guide to Cancer Care Delivery During the COVID-19 Pandemic, which provides detailed guidance to oncology practices on the immediate and short-term steps that could be taken to help protect the safety of patients and healthcare staff before resuming more routine care operations during the COVID-19 public health crisis.

Read More »


More COVID-19 Information

Coronavirus (COVID-19)

Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and ...
Read More
Advocacy Alert: Tell Congress to Expand Paid Leave Eligibility to Cancer Survivors

Advocacy Alert: Tell Congress to Expand Paid Leave Eligibility to Cancer Survivors

We urge Congress to expand eligibility for the paid family and medical leave to include people with chronic conditions, like cancer, and working members of their households. Because of their history of cancer and cancer treatment, cancer patients are especially vulnerable to COVID-19. [...] ...
Read More
Radiation Oncology Care During COVID-19 Webinar Image

Radiation Oncology Care During COVID-19: How Are Cancer Patients Getting Life-Saving Radiation Treatment?

NCCS has been collecting questions from patients and survivors on the coronavirus crisis and is addressing these questions through a series of webinars and podcasts. Leading experts from the American Society for Radiation Oncology (ASTRO) Ronald D. Ennis, MD and Louis Potters, MD joined NCCS CEO Shelley Fuld Nasso to ...
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Health Care Roundup: Cancer Care on the Front Lines of COVID-19; Study: Cancer Patients at Higher COVID-19 Risk; COVID-19 Cancer Disparities; More

Health Care Roundup: Cancer Care on the Front Lines of COVID-19; Study: Cancer Patients at Higher COVID-19 Risk; COVID-19 Cancer Disparities; More

Fourth Relief Package Passed – It’s hard enough to keep up with the day of the week, much less which relief package Congress is currently considering. We’re here to help make sense of what’s happening on Capitol Hill during these unpredictable times. Last week, Congress approved a fourth package totaling ...
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Health Care Roundup: NCCS COVID-19 Webinars & Podcast; Paid Leave for Vulnerable Patients; Resources for Finding Coverage; "Chemo Brain" Study; More

Health Care Roundup: NCCS COVID-19 Webinars & Podcast; Paid Leave for Vulnerable Patients; Resources for Finding Coverage; “Chemo Brain” Study; More

NCCS has been working diligently to bring you the most up-to-date and critical information for cancer survivors regarding the COVID-19 pandemic. Last week, we hosted a webinar with one of the nation’s leading oncology experts, Dr. Otis Brawley. In this webinar, he outlined how this public health crisis is impacting ...
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COVID-19 and Cancer Panel Discussion: Managing Stress, Anxiety, and Grief During Uncertain Times

COVID-19 and Cancer Panel Discussion: Managing Stress, Anxiety, and Grief During Uncertain Times

NCCS hosted a conversation this week about managing anxiety, stress, and grief with psychologist Dr. Imani Price and a panel of cancer survivors and advocates. Dr. Price shared tips on how to cope with stress during this unique time and included strategies such as connecting with friends and family virtually, ...
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COVID-19 and Cancer: A Conversation with Cancer Control Expert Otis Brawley, MD

COVID-19 and Cancer: A Conversation with Cancer Control Expert Otis Brawley, MD

Last week, NCCS hosted a conversation with cancer control expert and epidemiologist Otis Brawley, MD. NCCS CEO Shelley Fuld Nasso moderated the discussion. “We knew exactly who we wanted to be our first guest speaker in this series. Dr. Otis Brawley is a Bloomberg Distinguished Professor at Johns Hopkins University, ...
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Coronavirus (COVID-19)

How Cancer Survivors Can Cope With the Anxiety of COVID-19

Dr. L. Imani Price is a licensed psychologist at Women’s InnerFitness and Wellness Center and serves as the Vice Chair of the Board of Directors at Breast Care for Washington, D.C. Dr. Price suggests this expert advice: Many survivors are experiencing stress, anxiety, and PTSD from the new expectations and ...
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