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Survivorship Resources

NCCN hosts a number of resources for those facing cancer. They publish Guidelines for Patients, more than 70 free books — also available as an app — that help people with cancer talk with their doctors about the best treatment options for their disease. Other resources they offer include lists of questions to ask your doctor, webinars, links to support, and more.

Cancer Rehabilitation

ReVital Cancer Rehabilitation

Fighting cancer takes a huge toll on a survivor’s body. Up to 90 percent of cancer survivors experience pain and other function-limiting consequences brought on by chemotherapy, radiation and/or surgery. The ReVital Cancer Rehabilitation program can help survivors prepare for and maintain strength during treatment and get back to the things they care most about.

Nutrition and Exercise

Savor Health: Eat Well. Be Well.

NCCS has partnered with Savor HealthⓇ to bring personalized nutrition support to help people with cancer eat healthy and stay well nourished throughout treatment and beyond. Good nutrition can help people with cancer feel better and manage symptoms like diarrhea, nausea, tiredness, and decreased appetite.

  • Simply text InaⓇ from your cell phone 24/7 and she’ll respond with personalized nutrition tips, recipes, and answers to your questions.
  • Knowledge and advice from InaⓇ comes from registered dietitians, nurses, and doctors who are experts in treating and supporting cancer patients.
  • Registration and unlimited 24/7 access to InaⓇ is free, safe, and secure.

Financial Health

Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.

Blood Cancer

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Let’s Chat CAR T: an educational website for patients and caregivers to learn more about CAR T-cell therapy (CAR T). On the website you’ll find resources, including videos and downloads, and the option to sign-up for a one-on-one conversation with a patient or caregiver who has CAR T experience.

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The Leukemia & Lymphoma Society® (LLS) mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

“Navigating Life During and After a Blood Cancer Diagnosis” Workbook

The Leukemia Research Foundation is dedicated to conquering all blood cancers by funding research into their causes and cures, and enriching the quality of life of those touched by these diseases.

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The Lymphoma Research Foundation (LRF) is the nation’s largest lymphoma-focused health organization devoted to improving care through education and support services and improving outcomes through investment in the most promising lymphoma research. Our mission is to eradicate lymphoma and serve all those impacted by this blood cancer.

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A pioneer in precision medicine, the Multiple Myeloma Research Foundation (MMRF) seeks to find a cure for all multiple myeloma patients by relentlessly pursuing innovations that accelerate the development of precision treatments for cancer.

Breast Cancer

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Breastcancer.org is a patient-focused resource for breast health and breast cancer information and support. They engage, educate, and empower people with expert information and dynamic peer support community to help them make the best decisions for their lives.

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Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill our mission of providing trusted information and a community of support to those impacted by the disease, Living Beyond Breast Cancer offers in-person experiences and on-demand emotional, practical and evidence-based content that is meaningful to those newly diagnosed, in-treatment, post-treatment and living with metastatic disease.

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National Breast Cancer Foundation’s (NBCF) mission is to help women now by providing help and inspiring hope to those affected by breast cancer through early detection, education and support services.

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Sisters Network is a national African American breast cancer survivorship organization, with many local chapters across the country. Sisters Network, Inc. is committed to increasing local and national attention to the devastating impact that breast cancer has in the African American community. The educational materials available on their website include brochures, breast cancer facts, a list of resources, webinars, and more. Their Breast Cancer Assistance Program (BCAP) provides financial assistance to breast cancer survivors in active treatment.

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Susan G. Komen addresses breast cancer on multiple fronts such as research, community health, global outreach and public policy initiatives in order to make the biggest impact against this disease.

GI Cancer

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Founded in 1999 by a group of 41 survivors, caregivers, and friends, Colorectal Cancer Alliance (CCA) empowers a nation of allies to work with in order to provide genuine support for patients and families, caregivers, and survivors; to raise awareness of preventive measures; and inspire efforts to fund critical research.

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Fight Colorectal Cancer (Fight CRC) is a patient empowerment and advocacy organization, providing balanced and objective information on colon and rectal cancer research, treatment, and policy. They are relentless champions of hope, focused on funding promising, high-impact research endeavors, while equipping advocates to influence legislation and policy for the collective good.

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The GI Cancers Alliance works to raise awareness, provide education and advocate to prevent, treat and cure gastrointestinal cancers through a collaboration between advocacy groups, industry and institutional partners.

Lung Cancer

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The American Lung Association is committed to defeating lung cancer and supporting those affected by this disease. They offer a variety of resources and information about lung cancer.

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Founded by patients and survivors, GO2 Foundation for Lung Cancer is dedicated to saving, extending, and improving the lives of those vulnerable, at risk, and diagnosed with lung cancer. They work to change the reality of living with lung cancer by ending stigma, increasing public and private research funding, and ensuring access to care.

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Lung Cancer Foundation of America’s mission is the improvement in survivorship of lung cancer patients through the funding of transformative science. While raising funds to support lung cancer research, LCFA will raise the public’s awareness and serve as a resource for patients or anyone seeking answers, hope, and access to updated treatment information, scientific investigation, and clinical trials.

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LUNGevity is part of the lung cancer advocacy community, providing programs and driving change for those with lung cancer today and in the future. They fund primary research, and also conduct patient-focused research to better understand their unmet needs and convene multi-stakeholder meetings to streamline the research process and accelerate progress to patients. LUNGevity seeks to empower patients to be active decision makers in their treatment process through our extensive educational resources, online peer-to-peer support, and in-person survivorship programs.

Metastatic Cancer

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Getting a diagnosis of metastatic breast cancer can feel like getting written off. Because MBC is considered incurable, achieving official status as a “cancer survivor” remains just out of reach. So do most survivorship programs designed to support cancer patients post-treatment. But people can live with MBC for years, and they need and deserve this kind of holistic support to live their best life.

Project Life was created by people living with MBC to bridge that gap. As an online home for metastatic breast cancer patients and their loved ones, Project Life is designed to support all facets of wellness: from financial and social, to spiritual, physical and emotional. Its virtual “wellness house” is a space where members can find mentors and meet other MBC thrivers, join survivorship conversations and classes, and explore skills and knowledge that empower them to make every day the best that it can be.

Prostate Cancer

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The Prostate Cancer Foundation funds the world’s most promising research to improve the prevention, detection and treatment of prostate cancer and ultimately cure it for good.

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The Prostate Cancer Research Institute’s mission is to improve the quality of prostate cancer patients’ and caregivers’ lives by supporting research and disseminating information that educates and empowers patients, families, and the medical community.

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ZERO – The End of Prostate Cancer’s mission is to end prostate cancer. ZERO advances research, improves the lives of men and families, and inspires action. ZERO offers comprehensive support for prostate cancer patients. Starting with education, we provide millions of men and families with disease information through our website, printed materials, videos, and webinars.

Sarcoma

Our mission is to advance LMS research in order to accelerate treatment options and offer supportive resource assistance to patients and caregivers throughout the diagnosis and treatment journey.

The Sarcoma Coalition is a collaboration between sarcoma advocacy organizations across the United States with a common goal: provide research support and resources for the sarcoma community. Working together, the Sarcoma Coalition advocates for educational programs about sarcoma, supports research, and strives to communicate the collective voice of sarcoma advocacy organizations.

Acknowledgement

The Survivorship Checklist Website is supported by educational grants from Daiichi Sankyo, Eisai, Janssen Pharmaceuticals, and Pharmacyclics.