When diagnosed with cancer, you deserve the best possible care through your diagnosis, treatment, recovery and long-term follow-up. Ensuring Quality Cancer Care, a report of the Institute of Medicine and the National Research Council, found that a substantial proportion of cancer patients do not receive the best quality care. The report recommends systems changes to improve the likelihood that more people will receive high-quality cancer care in the future. NCCS is working very hard on a national advocacy agenda to assure that all Americans can access this care. Meanwhile, here are some steps that YOU can take to obtain the best care NOW.

Listen to the Cancer Survival Toolbox^®

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How Do I Find Experienced Care Providers?

Choose a doctor with experience treating your type of cancer. Such a doctor will often be a board-certified oncologist, but other types of health care providers may specialize in the treatment of certain types of cancer. For example, urologists often treat prostate cancer and dermatologists treat many skin cancers.

Doctors involved in research may be able to offer you promising new treatments and provide access to clinical trials and other experimental programs.

Oncology researchers have devised many treatment plans and protocols based on the best available scientific evidence. Their use helps to ensure that you receive the best care supported by the latest scientific advances. Check to see if your health care providers are using the guidelines and protocols that are available for your situation.

If you need surgery or care that is considered “high-risk” – for example, surgery for cancer of the pancreas, esophagus, or for some types of lung cancer – consider getting care at facilities/hospitals with extensive experience in such procedures because they tend to have better outcomes.

How Do I Select and Evaluate My Doctor or Specialist?

By extension this also relates to your nursing care and the hospital or facility at which you will receive treatment.

• Research the credentials of the professional(s) that will be handling your care. Check their board certification(s) in the Official Directory of the American Board of Medical Specialties (ABMS) (available in the reference section at most libraries) or online at www.abms.org. The American Society of Clinical Oncology (ASCO) has a website especially for consumers at www.cancer.net, which features an option to find certified oncologists by name, location and specialty (click on ASCO Resources, then Find an Oncologist).
• Check with your State Medical Board – listed with the Federation of State Medical Boards at www.fsmb.org – or your local medical society.
• Ask about their education, specialty training and experience – in years and number of procedures or cases similar to yours.
• Ask for referrals to other patients with a similar diagnosis who have given permission to be contacted. Although it’s tempting to ask a relative, neighbor, or friend for a referral, it is always best to do your own research to find a physician and/or cancer center that is suited to your illness and situation.
• Call the Cancer Information Service toll-free at 800-4-CANCER (800-422-6237) for a listing of the National Cancer Institute’s (NCI) designated Cancer Centers.
• Seek a second opinion. Ask your physician for a referral to another specialist, or do your own research to find one.
• Other things to consider when making this decision: your support system (family, friends), which may affect location, transportation, and access to other supportive care services such as counseling, rehabilitation and support groups.

How Do I Effectively Communicate with My Health Care Team?

• Evaluate the health care team’s responsiveness to your questions and their ability to effectively communicate about your diagnosis, treatment and other concerns.
• You are entering into a partnership with this team. Ask who will coordinate your care–surgeon, medical oncologist, radiologist, or other specialist.
• Ask about accessibility. Ask for a contact person (and phone number) of a case manager, nurse, or nurse practitioner who can speak with you during non-business hours.
• Be sure that you or your designated advocate understands the medical terminology and the significance of scans, blood counts, other lab tests, and pathology reports.
• Ask about follow-up office policy: How frequently will you be seen? where (in office, by phone)? when will lab tests and other results be reported to you (immediately, within a week)?

Insist on Comprehensive, Coordinated and Continuous Care

Good cancer care involves doctors, nurses, social workers and other providers working as a team throughout your care.

Make sure that one member of your medical team is designated as your advocate to coordinate your care and guide your progress throughout treatment.

If you experience pain or symptoms such as fatigue or nausea, ask for assistance. Effective treatments are available for many of the symptoms of cancer and for the symptoms caused by cancer treatment.

Psychological counseling, social services and rehabilitation are among the support services that should be available to you. Maintain contact information to access the support you may need.

Demand a Lifetime of Excellent Care

You should feel comfortable asking questions and talking to your medical providers. Make sure they listen to you and respect your point of view. Your decisions and your dignity should be respected.

If you need assistance in finding care or alleviating medical costs, you may find help through support and volunteer groups such as Cancer Care, Inc., and the American Cancer Society.

If your doctor tells you your cancer is incurable, ask questions. Even if a cure is not possible, there may still be treatments that can prolong life significantly, as well as procedures to reduce pain and other symptoms. In fact, most symptoms associated with cancer care and treatment can be managed well. This is one area where your advocacy may require persistence as these symptoms vary from individual to individual.

Sometimes, in holding out hope, either doctors or patients may insist on very aggressive or controversial treatment when there is little chance that the treatment will prolong life. The option of hospice care may be overlooked, but should be considered because it can often offer individuals dying of cancer comfort and resources beyond what doctors and family alone can provide.