NCCS: National Coalition for Cancer Survivorship
Using the following questions to guide your response, describe ways you have advocated for better cancer care either for yourself, a friend or family member, or for many people.
How well did you understand your diagnosis and the treatment that was recommended for you?
Did your doctor or care team provide a written plan for your treatment that you could review with him/her and also discuss with your family?
Did your situation require choosing from different types or courses of treatment? How did your care team help you understand the options and decisions you were required to make?
If you did receive a written plan for your treatment was it helpful to you?
If you did not receive a written plan for your treatment, how did that impact you? (i.e., Did you feel you understood your treatment and related decisions adequately? Were you prepared for side effects of treatment and able to have side-effects managed?)
What would you have asked your doctor if you had been able to review a written care plan with him/her?
Did you experience side effects from your treatment that you might have been better prepared for if you had a written care plan?
With these types of questions in mind, please share any other information you would like about your cancer treatment experience.
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