NCCS Programs

The National Coalition for Cancer Survivorship (NCCS) is committed to improving the quality of cancer care. Your contribution will help us fund the important work we are doing in advocacy, policy, and coalition building within the cancer community. NCCS recognizes that our work is only made possible through the dedication of those who sustain us and for that, we are truly grateful.

 

Cancer Survival Toolbox®

 

Patient education is a priority for NCCS. We believe that access to credible and accurate patient information, such as NCCS’s award-winning Cancer Survival Toolbox® is key to demanding and receiving quality cancer care. The Cancer Survival Toolbox is a free, self-learning audio program that has been developed by leading cancer organizations to help people develop important skills to better meet and understand the challenges of their illness. The latest version of our award-winning Cancer Survival Toolbox is available with 2 new audio modules: First Steps for the Newly Diagnosed and Dying Well- The Final Stage of Survivorship. 

 

NCCS has distributed over 500,000 Cancer Survival Toolboxes to cancer survivors across the country, all provided free-of-charge. To support the National Coalition for Cancer Survivorship’s Cancer Survival Toolbox and other advocacy efforts and to allow us to continue providing this free educational resource to those in need please donate! If you know anyone that might benefit from this vital resource, please feel free to listen to it online or order a free CD version of the program by filling out our online form or calling 877.NCCS.YES.    

 

 

Cancer Advocacy Now!TM

 

In 2004, NCCS launched Cancer Advocacy Now!TM a legislative advocacy network that seeks to involve survivors in federal cancer-related issues. We are focused on growing our Cancer Advocacy Now!TM Network and deepening our relationship with our current network of 30,000 advocates. These individuals receive email action alerts and news updates, as well as opportunities to participate in advocacy efforts such as visits to legislators. We are currently developing an advocacy tool box as a resource to these grassroots advocates and working to develop personal relationships with advocates who can become leaders in their regions to further NCCS advocacy goals.

 

To support The National Coalition for Cancer Survivorship’s advocacy and network-building efforts please sign up and donate!  It is with your support that our work is made possible and for that we are truly grateful. 

 

 

Cancer Leadership Council (CLC)

 

Recognizing a need for the voice of cancer survivors to be heard during the national debate over health care reform, the CLC was convened in 1993 under the direction of NCCS. Beginning with eight cancer organizations, the CLC and has grown to 33 groups of cancer patient organizations, professional societies, and research organizations that work towards collective policy and advocacy efforts.

The CLC remains engaged in an array of issues furthering patient access to quality care.  Some of the issues addressed included endorsement of the Comprehensive Cancer Care Improvement Act, support of Expanded Access Programs, support for Cancer Clinical Research, urging the House and Senate to Pass the Stem Cell Research Enhancement Act, and comments on the Medicare Compendia.

 

To support The National Coalition for Cancer Survivorship’s coalition-building efforts in policy, advocacy, and to help advance the quality of cancer care in America, please donate! It is with your support that our work is possible and for that we are truly grateful. 

 

 

Cancer Policy Roundtable

 

NCCS’s Cancer Policy Roundtable is an innovative health care policy forum that allows representatives from the patient community including advocates, researchers, regulators, clinicians, academics and a diverse community of biotechnology and pharmaceutical companies to share information and stimulate new and/or existing concepts related to improving the quality of care for cancer survivors in the United States.

 

The faculty that present at the Cancer Policy Roundtable range from public policy lawyers and physicians  to representatives from the National Institutes of Health, the Food and Drug Administration, and the Centers for Medicare and Medicaid Services, Health Policy Advisors to US Congresspersons, leaders of the health insurance industry, pharmaceutical industry leaders and representatives from the biotechnology industries.  The range of public service and private industry representatives allows for a discussion of cancer care issues that affect multiple industries.

 

To support The National Coalition for Cancer Survivorship’s coalition-building efforts in policy, advocacy, and to help advance the quality of cancer care in America, please donate!  It is with your support that our work is possible and for that we are truly grateful. 

 

 

Survivorship Programs

 

The National Coalition for Cancer Survivorship is involved in many other projects. Breakaway From Cancer, a program that raises funds and awareness about free educational and advocacy-related resources from NCCS; Surviving with Confidence, a video program that addresses patient’s fears of chemotherapy and focuses on the role of self-advocacy through communication with the healthcare team; and creating resource materials to accompany a documentary by PBS affiliate WGBH about the progress in the war on cancer; and Frosted Pink With A Twist, a multimedia two-year campaign that encourages people to raise awareness and take action on women’s cancers.

 

To Support the National Coalition for Cancer Survivorship's survivorship programs and educational efforts and to help advance the quality of cancer care in America, please donate!  It is with your support that our work is possible and for that we are truly grateful.

 

 

 

SURVIVOR PROFILES

Merv Williams, three-year prostate cancer survivor

Life has many challenges, but it’s our response to the toughest tests that proves our mettle. When I was diagnosed with prostate cancer in 2007, I knew I had no other choice but to survive first and then make the most of my experience.
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