In 1993, health care reform issues reached national debate. To contribute to this debate and to develop a consensus on health care policies as viewed from the cancer patient’s perspective, NCCS, under the leadership of Ellen Stovall, founded the Cancer Leadership Council (CLC).
The Cancer Leadership Council (CLC) is a forum for discussion and advocacy on issues related to cancer health policy from the patient/survivor perspective. Since 1993, the CLC has grown from eight cancer patient organizations to 33 groups as additional cancer patient organizations, professional societies and research organizations have joined the CLC’s collective policy and advocacy efforts.
The CLC is engaged in a wide range of issues, but they relate to a fundamental goal of ensuring cancer patients access to high quality care. Issues of ongoing concern to CLC members include:
- Implementation of the Medicare prescription drug benefit;
- Adequate funding for biomedical research;
- Development of appropriate systems of care for cancer survivors;
- Initiatives to enhance the quality of cancer care;
- Insurance coverage of off-label uses of cancer drugs; and
- Improvements in the process for approval of new anti-cancer therapies.
List of Partners
American Cancer Society
www.cancer.org
American Society for Radiation Oncology
www.astro.org
American Society of Clinical Oncology
www.asco.org
The Bladder Cancer Advocacy Network
www.bcan.org
Cancer Support Community
www.cancersupportcommunity.org
The Children’s Cause for Cancer Advocacy
www.childrenscause.org
Coalition of Cancer Cooperative Groups
www.cancertrialshelp.org
College of American Pathologists
www.cap.org
Fight Colorectal Cancer
www.FightColorectalCancer.org
International Myeloma Foundation
www.myeloma.org
Kidney Cancer Association
www.nkca.org
The Leukemia & Lymphoma Society
www.leukemia.org
LIVESTRONG
www.livestrong.org
Lymphoma Research Foundation
www.lymphoma.org
Multiple Myeloma Research Foundation
www.multiplemyeloma.org
National Breast Cancer Coalition
www.breastcancerdeadline2020.org
National Coalition for Cancer Survivorship
www.canceradvocacy.org
National Comprehensive Cancer Network
www.nccn.org
National Lung Cancer Partnership
www.NationalLungCancerPartnership.org
National Patient Advocate Foundation
www.npaf.org
Ovarian Cancer National Alliance
www.ovariancancer.org
Pancreatic Cancer Action Network
www.pancan.org
Prevent Cancer Foundation
www.preventcancer.org
Sarcoma Foundation of America
www.curesarcoma.org
Susan G. Komen for the Cure Advocacy Alliance
www.komenadvocacy.org
US TOO International Prostate Cancer Education and Support Network
www.ustoo.com
