In 1993, health care reform issues reached national debate. To contribute to this debate and to develop a consensus on health care policies as viewed from the cancer patient’s perspective, NCCS, under the leadership of Ellen Stovall, founded the Cancer Leadership Council (CLC).
The Cancer Leadership Council (CLC) is a forum for discussion and advocacy on issues related to cancer health policy from the patient/survivor perspective. Since 1993, the CLC has grown from eight cancer patient organizations to dozens of groups as additional cancer patient organizations, professional societies and research organizations have joined the CLC’s collective policy and advocacy efforts.
The CLC is engaged in a wide range of issues, but they relate to a fundamental goal of ensuring cancer patients access to high quality care. Issues of ongoing concern to CLC members include:
- Implementation of the Medicare prescription drug benefit;
- Adequate funding for biomedical research;
- Development of appropriate systems of care for cancer survivors;
- Initiatives to enhance the quality of cancer care;
- Insurance coverage of off-label uses of cancer drugs; and
- Improvements in the process for approval of new anti-cancer therapies.