NCCS Executive Staff
As Chief Executive Officer, Shelley Fuld Nasso leads the the public policy activities of NCCS at a time of rapid and fundamental health care system change. Shelley joined NCCS in December 2012 and was named CEO in October 2013.
Prior to joining NCCS, Shelley served in leadership roles at Susan G. Komen, where she leveraged Komen’s grassroots network in Washington, D.C., and in state capitals. There she built relationships with policymakers and partner organizations and led a team of staff and volunteer leaders to influence state budgets and legislation. Under her leadership, Komen successfully secured $80 million in state funding for cancer screening and treatment for uninsured and under-insured women. She and her team also expanded the Komen grassroots advocacy program from a pilot of seven affiliates to more than 100 affiliates across the country engaged in federal and state advocacy efforts. Shelley has also served as Director of Community Philanthropy at The Dallas Foundation and held management positions at communications and technology enterprises. She is a graduate of Rice University and holds a Master of Public Policy from the Harvard Kennedy School.
Shelley’s commitment to the work of NCCS is strongly tied to the experiences in the cancer care system of her dear friend, Dr. Brent Whitworth, a beloved physician who was diagnosed with stage IV cancer days before his 42nd birthday and who passed away 19 months later. Through Brent’s experiences, Shelley witnessed the strengths and flaws of the cancer care system and embraces the notion that policy change can make cancer care better for patients and caregivers.
Shelley and her husband Michael live in Maryland and are the parents of three young boys.
Christin Engelhardt, the Director of Policy and Advocacy, joined NCCS in August 2015. She strongly believes in the NCCS mission, especially after having helped very close relatives and friends on the difficult and complicated cancer journey. Although her career began in political campaigns, Christin, while working on a Congressional commission on sleep, quickly came to find healthcare extremely rewarding and policy work particularly so. She is committed to advancing policy that helps patients be diagnosed and treated in accordance with medical evidence and individual needs, that fosters patients’ access to care and that advances research into knowledge gaps.
An advocate for more than twenty years, Christin has worked for non-profit patient organizations in the cancer field as well as in the fields of sleep and neurology. In addition, soon after Congress passed the Medicare Modernization Act, she joined a nonprofit focused on health-insurance coverage where she became immersed in the Medicare drug benefit (as well as other aspects of Medicare), Medicaid, and private insurance. In these roles, Christin has spoken on access to care and appealing health care denials; testified before the Food and Drug Administration from the perspective of patients; led the successful fight for Medicare coverage of a drug at the national level; created numerous educational materials for patients and health care professionals; managed an organization’s first Advocacy Day which resulted in research funding through a Congressional program; served on a professional society’s invited-expert panel examining a treatment for bone-marrow failure; and collaborated with the National Institutes of Health as the representative of an NIH-funded disease consortium. She has also co-authored several scientific articles published in peer-reviewed journals.
Elena Jeannotte joined NCCS as the Director of Philanthropy in the Summer of 2015. She is responsible for developing partnerships between NCCS and local and national corporations, organizations, foundations, and individuals. Elena has nearly 15 years of experience in constituent engagement in the healthcare field. Prior to joining NCCS she worked for Georgetown University Medical Center in roles of increasing responsibility. Most recently, she served as Senior Director of Constituent Relations and Events and was responsible for a fundraising and engagement program for Georgetown Lombardi Comprehensive Cancer Center. Elena also founded and served as president of a small non-profit organization focused on supporting esophageal cancer research at Johns Hopkins.
Elena’s passion for working in the field of cancer research and advocacy stems from serving as a caregiver to her parents, both of whom battled cancer. Their experiences as patients inspired Elena to start her career in the cancer field. She considers her role at NCCS, and her drive to support cancer survivors, as a way to keep the memory of her parents alive each and every day.
Dan Weber joined NCCS as the Director of Communications in February 2016. In this role, he guides the strategy regarding outreach to the media and other stakeholders, and ensures that the communications, website, and public relations messages consistently articulate NCCS’ mission and priorities. He also works closely with other senior members within the organization as the communications partner to support the fundraising and policy objectives.
Prior to joining NCCS, Dan served as the Director of Communications for Congresswoman Donna F. Edwards (MD-4) for over eight years, where he gained experience on political campaigns and on Capitol Hill that involved all aspects of communications and public relations. Dan is excited about the opportunity to apply what he has learned to help build upon and expand NCCS’ communications outreach. As a cancer survivor himself, Dan understands first-hand the importance of NCCS’ mission for patients, survivors, caregivers, and families.
Ellen L. Stovall (In Memoriam)
Ellen L. Stovall was a 44-year survivor of three bouts with cancer and advocated for more than 30 years to improve cancer care in America. After serving as the National Coalition for Cancer Survivorship’s CEO for many years, Ellen became the Senior Health Policy Advisor for NCCS. She provided invaluable insight on NCCS’ priorities until her sudden death, due to cardiac complications related to her cancer treatments, in January 2016.
One of the pioneers in cancer survivorship, Ellen was a founding member of the National Cancer Policy Board at the Institute of Medicine (IOM) and its successor, the National Cancer Policy Forum. The Forum allows government, industry, academic and survivor advocacy representatives to meet and privately discuss public policy issues that arise in the prevention, control, diagnosis, and treatment of cancer.
Prior to the establishment of the Forum, Ellen was vice-chair of the National Cancer Policy Board and co-chaired its Committee on Cancer Survivorship. In that capacity, she co-edited the IOM’s report “From Cancer Patient to Cancer Survivor: Lost in Transition” which addressed the issues adult cancer survivors face.
Ellen served as vice-chair of The Robert Wood Johnson Foundation’s National Advisory Committee to Promote Excellence in Care at the End of Life and as the vice-chair of the Foundation’s National Advisory Committee for Pursuing Perfection: Raising the Bar for Health Care Performance.
Ellen was a member of the Boards of Directors of the National Committee for Quality Assurance (NCQA) and The Leapfrog Group, and she served on a committee of the National Quality Forum (NQF) to establish consensus around cancer care quality measures. In 2010, Ellen co-chaired, with Dr. George Isham, an NQF Committee convened for the purpose of creating a Measure Development and Endorsement Agenda for the Department of Health and Human Services as well as serving on an IOM Committee charged with recommending Standards for Developing Trustworthy Clinical Practice Guidelines.
Ellen has served on numerous other advisory panels, working groups, and committees of the National Cancer Institute (NCI), American Association for Cancer Research, and the American Society of Clinical Oncology which inducted her as a Fellow in 2008. Ellen also served a six-year term on the NCI’s National Cancer Advisory Board, an appointment she received in 1992 from President Bill Clinton.
Ellen touched thousands of cancer survivors with her kindness and grace and wisdom; she is deeply missed. Yet her experiences and wisdom will continue to guide NCCS in its advocacy for the millions of cancer survivors. Her death will always be a reminder of the seriousness of late and long-term effects from cancer treatments, effects we seek to prevent when possible and to treat when unavoidable.
NCCS Executive Committee & Board
Sandy Welton has demonstrated throughout his long career the dual qualities of leadership and service to others. In the first decade of his career, he established himself in the not-for-profit sector through work with urban street academies on the Lower East Side of New York, the Vietnamese Children’s Fund, and The Justice and Policy Center Against the Death Penalty in North Carolina. His commitment to and experience working for causes pertaining to social justice eventually led him to found Suruban Partners, a communal living center in Durham, NC which served as a base for organizing people to promote the causes of peace and social justice. The leadership skills he developed, along with a strong attentiveness to the needs of others, traveled with him to work at First Union Bank in 1977, where he served as a director of the bank’s leadership and career development efforts.
Two years later, he joined the health care sector and founded Morehead Associates, a firm of 60 people who serve hospitals in all fifty states, and served as President and CEO until 2011. His commitment to people was made evident through Morehead’s work, which is to conduct employee and physician opinion surveys for hospitals. Using Morehead’s data, the hospitals can then facilitate change aimed at improving quality of care, safety, leadership, and other qualities necessary to helping others.
In addition to his work with Morehead, Mr. Welton has served on several boards, including the Self-Help Credit Union, Charlotte Chamber Music, and the Duke Institute for Care at the End of Life, as well as on the board for NCCS. He currently serves on the board of Health Care for All—Charlotte, a new grassroots organization that advocates for some version of Medicare for All in NC and across the nation. He is a father to four daughters.
Barbara Hoffman, J.D., is a member of the legal research and writing faculty of Rutgers School of Law Newark and is the founding chair of the National Coalition for Cancer Survivorship. She is the author of numerous book chapters, articles, Web content and consumer booklets on the legal rights of cancer survivors She is the editor of A Cancer Survivor’s Almanac: Charting Your Journey, John Wiley & Sons (3d ed. 2004).
Since the early 1980s, Professor Hoffman has advocated for the rights of cancer survivors and individuals with disabilities. She has spoken at more than 100 conferences and programs about cancer survivorship. She has served as a consultant to the National Cancer Institute, comprehensive cancer centers, nonprofit organizations and websites. Professor Hoffman was an area specialist to the Cancer Survival Toolbox. She is a member of the Princeton University Alumni Schools Committee. Professor Hoffman is the recipient of the President’s Award from the National Coalition for Cancer Survivorship and of an Image Award from DateAble, Inc.
Michael L. Kappel served as the acting President & CEO and as a board member continues to serve the organization, representing NCCS at conferences and other meetings ensuring the voice of the survivor remains at the center of health policy reform and quality improvement. He retired in 2011 as the Senior Vice President, Government & Industry Relations for McKesson Technology Solutions. He served as an advocate for healthcare policies that enable improved care through the use of information technology. He was responsible for developing McKesson Technology Solutions’ responses to emerging legislation and regulatory initiatives. He previously served as Senior Vice President, Strategic Planning where he was responsible for product direction and long-range strategic planning. Kappel is active in a number of the healthcare industry’s information technology organizations. He was elected a Commissioner for the Certification Commission for Healthcare Information Technology where he previously served as co-chair of the Network Certification Workgroup, the Certification Process Workgroup and the Advisory panel. He is past chair of the Policy Committee of the National Alliance for Healthcare Information Technology and currently serves as a member of the Leadership Council of the eHealth Initiative and the steering committee of Connecting for Health. He currently is a member of HIMSS Electronic Health Record Association which he helped to found in 2004 and where he has served as a past member of the Executive Committee.
Kappel brings to this position more than thirty years of experience in healthcare information technology development, strategic planning and business development. During his career, Kappel has served in numerous positions in private industry. Prior to rejoining McKesson in 2002, he was executive vice-president of ProVation Medical Inc., Minneapolis, Minnesota. Prior to joining ProVation Medical Inc., Kappel was chief executive officer of MedSpecialists, Inc., a start-up company that was acquired by ProVation in 2001. Kappel also held numerous leadership positions over 16 years with McKessonHBOC and HBO & Company.
Kappel earned a bachelor’s degree in psychology from the College of William and Mary and a master of business administration degree in finance and healthcare administration from Cornell University.
Samira K. Beckwith, a two-time cancer survivor, has over 30 years’ experience in professional healthcare and social services. She has served as President and CEO of Hope HealthCare Services, based in Fort Myers, Florida, since 1991.
Under her leadership, Hope has created a unique array of services for the frail elderly and children and today serves nearly 3,000 people and their families in a 10,000 square-mile area throughout southwest and mid-Florida.
In 2010, Samira was appointed as a Team Leader on Florida Governor-elect Rick Scott’s Health and Human Services Transition Team. Former Governor Jeb Bush described her as a visionary who provides leadership on a local and national level – “passionate about ensuring the highest quality” of service in her role as President of Hope. With that in mind, he appointed Samira to the state’s Long-Term Care Policy Council, focused on providing the most cost-effective, community-based services for Florida’s elderly. She has testified before a US House Judiciary subcommittee on the need for legislation to enable better care and comfort for those at the end of life.
Samira currently maintains leadership roles in multiple national, state, and community organizations including the Board of Directors of the National Hospice and Palliative Care Organization, Florida Hospices and Palliative Care, and The Ohio State University Alumni Association Board. Samira is the Founding President of the Florida PACE Association – the Program of All-inclusive Care for the Elderly.
Awards and honors bestowed upon Samira include the prestigious Ellis Island Medal of Honor, presented to distinguished Americans who “represent the very essence of the American way of life.” She has twice been honored by the National Association of Social Workers, as a Community Action Hero and a Social Work Pioneer. She has received the Ohio State University Alumni Association’s Medalist Award, and has been inducted into the Ohio State University College of Social Work Hall of Fame.
Eleanor Winter serves as Senior Vice President of Special Projects for the National Cable & Telecommunications Association in Washington, D.C. Ms. Winter is responsible for CablePAC, the cable television industry’s political action committee. In this capacity, she organizes and coordinates fundraising events for federal candidates and Members of Congress. In addition, Ms. Winter advises NCTA member companies on their fundraising strategies.
Before joining NCTA, Ms. Winter worked for the public relations firm Cribben, Miller and Moses. The firm, with offices in Washington D.C. and Los Angeles, concentrated on political and corporate fundraising projects.
Prior to that, Ms. Winter worked for Senator John Stennis from Mississippi and later for Senator Paul Simon from Illinois. Ms. Winter is a cancer survivor.
Tom Koutsoumpas has more than 30 years experience in government, public policy, politics, issue advocacy, public relations and crisis communications.
His expertise in Government Relations comes from his multifaceted experience at the Federal and State levels. He has long been engaged in health policy issues and been a strong advocate for health care providers, patients, and caregivers. Prior to joining UnitedHealth Group, Tom served as Executive Vice President and Chief of public affairs with VITAS Healthcare Corporation, the nation’s largest and one of the oldest providers of end-of-life care. Preceding his work for VITAS Healthcare Corporation, he was Senior Advisor and Executive Assistant/Federal Affairs to Indiana Governor, now Senator Evan Bayh. He has also served as Government Relations Representative at the Washington, D.C. law firm of Hogan and Hartson and as Government Relations Counselor for Burson-Marsteller, one of the nation’s largest public relations firms. Tom began his work in Public Policy in Washington, D.C., serving for over 11 years on the staff of United States Senator Birch Bayh where he performed a variety of staff and legislative functions.
Mr. Koutsoumpas currently serves on the Board of Directors of the National Hospice Foundation; served on the Board of the National Hospice and Palliative Care Organization and its Public Policy Steering Committee. He is also a member of the Business-Government Relations Council and a former member of the Board of Regents of Georgetown University, where he remains an active alumnus.
Tom is a graduate of Georgetown University in Washington, D.C. and holds a degree in American Studies.